Leukodystrophy???

iVillage Member
Registered: 03-29-2003
Leukodystrophy???
2
Mon, 03-31-2003 - 1:42pm
I was just wondering if anyone had any information about leukodystrophy. Diagnosed with this rare disease is an 8yr old girl and her 6yr old brother. I know the basics of the disease, what I really want is an honest outlook on the future of the kids. Some people tell me that it might not get so bad, others tell me the future may be grim. I just want to know what really lies ahead.

iVillage Member
Registered: 11-22-2000
Mon, 03-31-2003 - 6:33pm
Hi and welcome. I don't know anything about leukodystrophy, so I'm afraid I can't help much. You've probably seen it already but I did find a site that looked like it might have some interesting information: http://www.ulf.org/

Please come back and post some more!

Lauren