Looking for Answers

iVillage Member
Registered: 11-25-2003
Looking for Answers
2
Tue, 11-25-2003 - 9:32am
Hi, I am new to this board and I would like to start by telling you a little about my self, I am a mother of three children 2 girls ages 12 and 10 and 1 boy age 23 months. My daughter Kristen is 10 and has many different emotions and needs. She is 10 years old and has several tests done from a genetics doctor and all the tests that were done came back ok. My little girl doesn't have a diagnosis for her disability and if there is anyone out there who is going through the same thing please feel free to reply.

My little girl started developing seizures when she was about 2 months old only for a short time, testing was done and she was diagnosed with petite seizures which now have deminished. She began walking around age 2and didn't start saying mom,or dad until around age 4. She is 10 now and in a special school for the handicapped, her speech is around 10 actual words that are understandable, she is no fully potty trained, she recently had hamstring surgery on both legs, the doctors say her intellectual level is somewhere around 2-3 years of age when it comes to thought processing things, she doesn't (can't) write her name or anything else.

My little girl can be very loving one minute and the next she is on the floor crying and tightening up to the point where you cannot pick her up. One minute she is fine and the next she is upset kindsa like a jeckel and hyde. I love my girl very much and couldn't think of one minute I would want to be without her she is my Angel from above.

If there is anyone who wants to put any feedback or going through anything similar that could maybe give me some insight on this please rely.

Thank you

iVillage Member
Registered: 08-28-2003
Wed, 11-26-2003 - 4:43pm
I don't have an answer for you about your daughter, but I can direct you to somewhere that may be able to help you. You can e-mail me privately if you would like. Sharonlackey@hotmail.com
iVillage Member
Registered: 12-01-2003
Tue, 12-02-2003 - 11:14am
Hi! I just wanted to respond to your post even though my situation is much less severe than yours. My 9 yr old son has been diagnosed with nonverbal learning disorder and I have struggled to get information and find other parents to talk to. Your post just tugged at my heartstrings and I just wanted to offer you some moral support. Don't give up on testing your daughter to get a diagnosis for her. The answers are out there somewhere, sometimes you have to really hunt for them. It is obvious how much you love her! Keep pushing and pushing until you find answers and get the help you need for her. It took two years of testing to get a diagnosis for my son. When we finally did it was such a relief to have a name for it and know that we were not alone. Now he is in a program that has changed everything for him. He is doing well in school and his whole attitude has changed. Your daughters "tantrums" may just be neurological and she can't help herself. On the other hand she may be terribly frustrated that she can't express her feelings or be understood. As a mother I can feel your frustration and pain. Keep fighting for some help and answers. I wish you all the best and you are in my prayers.