MACE, Mitrofnoff, and Bladder Augment??

iVillage Member
Registered: 07-02-2004
MACE, Mitrofnoff, and Bladder Augment??
8
Sat, 01-28-2006 - 2:01am

My son is possibly going to have to have all of these surgeries in order to gain continence..(he has Spina Bifida)...I was just looking to chat with anyone who has been through any of or all of these surgeries.

Deena


iVillage Member
Registered: 03-19-2003
Sat, 01-28-2006 - 4:39pm

hi Deena and welcome!

 


 



iVillage Member
Registered: 08-27-2005
Mon, 01-30-2006 - 1:53am

My daughter has spina bifida as well as cloacal exstrophy and some other conditions.


Due to the cloacal exstrophy (it effects the pelvic organs) she had no bladder.

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iVillage Member
Registered: 03-19-2003
Mon, 01-30-2006 - 12:27pm
Thanks for your willingness to share!

 


 



iVillage Member
Registered: 07-02-2004
Mon, 01-30-2006 - 3:47pm

Wow sounds like you've been through several surgeries....We've been lucky so far, Tristan has only needed 3...This surgery will be number 4...


Did the surgery work for you guys??


iVillage Member
Registered: 08-27-2005
Wed, 02-01-2006 - 3:51am

<sounds like you've been through several surgeries>


She has about 15 (neuro, ortho, uro, etc.), as well as scopes and other quick procedures.



There were complications after the 1st attempt, so no recovery, and they went back in and did it again a 2nd time.

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iVillage Member
Registered: 08-27-2005
Wed, 02-01-2006 - 4:11am

It is very unlikely that the following will happen to your son, but I should be frank with you about my daughter's predicament.


She has been in pain for a few years and can't eat, sleep, or lie down.

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iVillage Member
Registered: 07-02-2004
Wed, 02-01-2006 - 12:37pm

Im not worried the staff will forget :)


I was just stating how active he is...


It was good to hear a not so good experience...I think its important that we all remember, that in most cases things are fine, but occasionally they are not...



iVillage Member
Registered: 08-27-2005
Wed, 02-01-2006 - 6:44pm

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