mild c.p

iVillage Member
Registered: 10-14-2006
mild c.p
1
Thu, 11-16-2006 - 11:09am
my 5 yr old son has mild c.p
somedays it can be very frustrating dealing with other people.
He is only slightly delayed in his gross motor skills so he is not overly noticeable with his disabliity but what i find most frustrating is people look at him and say oh he's doing fine dont worry about anything. they dont understand how difficult he finds everyday things just getting dressed in the morning takes him over 10 minutes with alot of struggles.
my question is where do i fit in? hes not severely diasabled so i feel awkward taking him to places or signing him up for classes for disabled kids but at the same time i sign him up for classes with the average kids and hes always the least skilled or the last one and it frustrates him that everybody in his class is doing better than him.
anybody with similar situation or any ideas would be greatly appreciated
thanx casper
iVillage Member
Registered: 10-21-2003
In reply to: kccasper
Thu, 11-16-2006 - 4:12pm
My sympathies lie with you. Someitmes it can be tough not knowing where you "belong". I'm not an expert or anything but I went to a conference where one of the speakers was a person who wasn't "severely" disabled, in the sense that like your son to physically look at her you wouldn't notice anything amiss. She did activities with BOTH able bodied and unabled bodied people. That way she wouldn't always be the last. slowest, etc, but that she wouldn't always be the best, fastest, most able either. While 5 is young could you maybe ask your son where he'd like to go? Does he have some able bodied friends that he could share activites with? Thats how she got involved in the different activities she just went to the ones she liked, regardless of who it was for.
Also is there a CP association in your community? We have one here (although we do not participate as of yet) and there are many people with a huge variance in abilities and ages. You could also find out if your children's hospital (or the medical centre where you visit) has a recreational therapist. Our hospital just filled that position and she mailed us a complete catalogue of various recreational pursuits that are available in our community for children with special needs. And make no mistake, if he has one need that is beyond what society considers "normal" (not my favourite of expressions...but don't get me started LOL)then he is a special needs child and you are very welcome in our ranks!LOL