new here 6yr old w/mild spina bifida
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|Thu, 04-20-2006 - 4:58pm|
My 6yr old was born with a mild case of Spina Bifida called Lypomyomenengisil. Basically all that was affected was his potty training.We thank God every day that this would be our only problem. We were told that he would potty train late so we were totally prepared for that. By age 4 1/2 he was going #1 all on his own. We have seen the urologist and have had suggestions in how to help with the issue of #2. He now has to have a suppository every morning to empty his bowels. This has been working well.
A few months ago there was a miscommunication at school and we were asked to start sending him to school in pull ups. We did until a week later we were able to talk with the nurse and help her to understand that to him a pull up is a diaper and he does not go to the bathroom at all when he wears one. We were given permission to send him in underwear. Then he had a substitute teacher in his class for an entire week and he was too embarrased to ask her if he could go to the bathroom. She was unaware that there was a rule that no one had to ask they just go. Since then he has been having many pee accidents. His dad and I are getting very frustrated because we know that he can make it he just doesn't want to. He says that he is too busy doing something else and then doesn't want to tell anyone when he does have the accident. The teacher and the nurse at the school are frustrated because despite them sending him to the bathroom on a regular schedule he keeps having accidents near the end of the day. He comes home from school wet every day. We have tried a reward system at home and at school that worked well at first but then suddenly he doesn't care anymore. We have explained that if he doesn't start going when he needs to that the doctors will insist that he has to be cathederized daily.
I am afraid of this effecting my younger son that is fully potty trained. One day he told me that he had an accident when he hadn't just because his brother did have one. Also my younger son is almost 4yrs old and still wearing a pull up to bed because brother does. One the 4yr old just wants to be like brother, but Two we are afraid of what it would do to my 6yr old if his younger brother wears underwear and he still has to have a pull up. He is not at all ready for underwear at night and he knows it. Every morning he tells us "I wish I was normal like all the other kids at school." Yet every day he refuses to go to the bathroom when he needs to. We feel as though we are getting to the end of our rope and we don't like that we have to keep sitting him down to seriously talk about the same issue over and over.
Does anyone have any advice? We could really use some prayers for him and for us. Thanks