New Here-Jay's Story

iVillage Member
Registered: 04-07-2003
New Here-Jay's Story
5
Fri, 03-12-2004 - 10:38pm
Hi, my name is Georgette. I have a son, Jay, who is 2 years old. He was born 11 weeks prematurely. He spent almost four months in the NNICU and then finally came home on oxygen and a heart-apnea monitor. We have always had concerns about his hearing but have never gotten the same results twice from his hearing test. We must have done 20 by now. He has had tubes in his ears and now we are getting ready to do them again. This time his ENT wants to take his adnoids out too. Three weeks ago, we decided to do a sedated ABR hearing test on Jay to finally determine what he can hear. That audiologist told us that Jay has a 90 decibel hearing loss. He has had previous tests done where he had hearing on all levels except at 5000 Hz. I am just wondering if anyone has any experience with this kind of hearing impairment in children and advice on how to go about teaching sign language and just about any other information anyone would like to offer. Thank you so much. I am looking forward to getting to know all of you stories!
iVillage Member
Registered: 03-19-2003
Sat, 03-13-2004 - 10:08am

HI Georgette, welcome to the board.

 


 



iVillage Member
Registered: 04-07-2003
Mon, 03-15-2004 - 9:27am
Hi, thanks so much for your warm welcome. We are already involved in a program in our area called Babynet. Is that the same thing? Its an early intervention program that helps out with therapy and resources. It just seems like they are dealing with every thing for the first time. Like there has never been another kid that has needed these kinds of special needs before and that just seems so hard to believe. We are using a couple of signs with Jay. That is such a great idea about looking at local colleges for sign language class. Thank you. I am going to look into that. I have been trying to learn from a book which is just not working because I don't have any time to read with a very active toddler around! Thank you so much for your help. I really appreciate it.

Georgette

iVillage Member
Registered: 03-19-2003
Mon, 03-15-2004 - 12:01pm

Georgette, you're more than welcome!

 


 



iVillage Member
Registered: 03-16-2004
Wed, 03-17-2004 - 12:41am
Hi Georgette.

I'm new to this site but have a story for you.

My DD who is now 18 months was born with a few problems, those not evident to anyone. In the hospital she was born in the do an 'early infant hearing screen'. It is done before your child even goes home. Well, my DD failed it three times. Each time they had a reason why....either she was moving to much, breathing too load, etc.

When i first suspected hearing loss, I contacted an organization called 'Children's Health and Development Services'. They began to advocate on my behalf to get the straight answers. That started the ball rolling. My daughter had two ABR tests, neither one of them sedated, and both were inconclusive. I understand your frustration, really I do.

My DD had the tubes inserted, because after 9 months they told me they knew it was fluid behind her ear drums. Happy ending on the hearing front.

However, I have 2 CHADS workers come into my house each week. One home based development worker and one speech and language assistant. They are trying to stimulate my DD speech through play and sign. They gave me a starting signing sheet with beginning words on it. It's helped to use it at hope.

I'm not sure where you are located but check into Government disability resources and those provided by your local hospital. Through your local hospital you can access the needed information though rehabilitation services/speech language and hearing services. If all else fails, you should be able to get the info you need directly from your audiologist.

I hope this helps. I will check back with you later. I wish you all the best.

good luck

Tracy

iVillage Member
Registered: 03-19-2003
Wed, 03-17-2004 - 10:23am

Hi Tracy and welcome.