New here...finally diagnosed

iVillage Member
Registered: 12-01-2004
New here...finally diagnosed
4
Wed, 12-01-2004 - 11:00pm
I don't know if this is the right forum to be posting in (if not, any suggestions?). My son, who is 8, has just recently been diagnosed with autism and ID (intellectually disabled, the new "term" for mentally retarded). The diagnosis does not come as a complete surprise, but it was very difficult hearing it today at the pre-ppt meeting. He just had his tri-annual testing done and this is the diagnosis they have come up with. There is a part of me that feels relieved to finally have some answers, but I am also very shocked and sad. I don't know where to go from here. He receives great services at school, but I feel like there is so much more I should be doing. Should I get a second opinion, just to make sure the school has given the right diagnosis? There is so much going through my head right now, I just don't know where to start. Hopefully someone can help. Thanks in advance.
iVillage Member
Registered: 02-19-2004
Thu, 12-02-2004 - 6:54am

Hi and welcome to the board!

iVillage Member
Registered: 03-19-2003
Thu, 12-02-2004 - 9:05am

Hi and welcome!

 


 



iVillage Member
Registered: 03-26-2003
Thu, 12-02-2004 - 9:52am

I would recommend that you go to the doctor(s) and/or person(s) who performed the outside testing to get the diagnoses. Ask them to write a letter stating any accomodations, modifications, and/or related services that they feel would benefit your ds. They will probably have a pretty good idea of what these should be. When you receive the letter from these people, write a letter to the school asking for an IEP meeting. Send the letter via certified mail with verification of receipt so that you know when they received the letter. The school must then hold an IEP meeting within 10-14 days. At the meeting present the letter to the team members. Let them know that you don't feel that the current IEP is not working. Then go to work with the IEP team trying to formulate a more appropriate IEP.


A good website for more info on writing an IEP is www.wrightslaw.com .


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iVillage Member
Registered: 02-19-2004
Thu, 12-02-2004 - 10:27pm

Thanks Steph!