New, lost and alone
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|Mon, 02-08-2010 - 7:28pm|
My name is Sarah. I gave birth to twins at 26 weeks in December 09. One twin did not survive. I just found last week that my surviving DD is bilaterally deaf. Needless to say, this is a shock. My concern isn't that she won't have a wonderful life, I know that there is a huge deaf culture and that deaf people can do amazing things. But I am terrified! I have done research and am so scared that she will feel isolated and pull away from her older sister or father and I since we can hear. And there are SO many decisions to be made and conflicting opinions on what is best, I am terrified of making the wrong decision for her and setting her off on the wrong foot.
My husband is in the Navy and is at sea right now and the ship is currently on a communication black out so he doesn't know yet. I called my mother in tears and her reaction was to ask me what sins I have committed to have a, and I quote, "useless retarded daughter". I hung up on her. I was feeling so guilty about how premature the twins were, my body failed them and my DS died because of it. Now my DD is deaf because of it and has a huge obstacle to over come. I pray that I can help her to do that...right now I am just so lost.