Oh MY!....

iVillage Member
Registered: 03-19-2003
Oh MY!....
14
Tue, 07-20-2004 - 8:04am
You're all so quiet again!

 


 



Pages

iVillage Member
Registered: 10-21-2003
In reply to: cl_janx7
Tue, 07-20-2004 - 11:25am
summer stuff! we had family visit, a wedding, put in a garden, laid sods for the front yard. Alicia has computer appts twice a week,Jordan has had his 18 month checkup. We're looking for a new to us truck, gone to the Aunt and Uncle's cottage for a day of boating. Getting the kids photo id's done so they can get on the plane next week...getting ready to start packing to go away! And that was in the last 7 days! I'm tired. lol
iVillage Member
Registered: 03-19-2003
In reply to: cl_janx7
Tue, 07-20-2004 - 11:50am

I'm exhausted just reading your list of accomplishments!

 


 



iVillage Member
Registered: 10-21-2003
In reply to: cl_janx7
Tue, 07-20-2004 - 3:28pm
You know...reading it takes alot more time and energy than it seems actually DOING it did!LOL We just got back from checking out the airport and what will happen on flying day! Found out that the Carrie Seat that says is OK for airplanes...would be denied as a seat on Westjet. WHY? Because it doesn't have a five point harness. It only has the hump between the legs, not the strap that you would find in a car seat. It has a lap belt and shoulder belts BUT not the strap between the legs. Ah well, at least Alicia uses a regular booster/car seat in the van, you know the high backed ones?! So I do have a seat that she can sit in. But I DO want to point out that any other 6 yr old wouldn't even be IN a seat, except for the regular plane seat...which (gasp) doesn't have a five point harness. Really though, at least we were smart enough to check before hand. So the lady put in the computer that Alicia zqasa ( v v <<<(HELLO from Jordan LOL)will have her wheelchair right up until she boards the plane, and that it will be waiting for her at our lay over in Calgary (we'll be there for 2-3 hrs).

So of course they don't serve milk as a beverage on the airplane...which is the only liquid that Miss Alicia will allow anywhere near the vicinity of her mouth!LOL So I have to pack milk for her and Jordan's soy milk. And even though it is an 8 hour flight they only serve cookies and such, no meals anymore, so now I have to pack lunches for both of them. They are going to try and set aside a few more seats for us , there are 6 of us flying, so if the plane isn't full that day she'll set aside 8-10 seats together, so that we have a little more room. Apparently they do this whenever infants (kids under 2) and/or wheelchairs are booked to fly. Jordan is the one I'm worried about, he is SO busy and hates to sit still....I'm almost tempted to tranquilize him for the flight.LOL

So I think other than packing we are all set to go, just hair cuts tomorrow, and one computer appt next week and then we are all clear and ready to fly.
iVillage Member
Registered: 02-16-2004
In reply to: cl_janx7
Wed, 07-21-2004 - 2:01pm
Hey Jan!

I am doing the work full time and try to enjoy the summer thing.

The kids are enjoying it much more than I. It stinks being a grown up!

I do have a question. Do you or anyone else know how I could go about

purchasing a stroller for special needs children. My Daughter is up to 50lbs

now and carrying her is not an option. She does walk for a while, but big outings

are a problem. Let me know if you have any ideas.

Hope you are enjoying your summer. Stay cool!

Nancy

iVillage Member
Registered: 10-21-2003
In reply to: cl_janx7
Wed, 07-21-2004 - 4:26pm
Hi Nancy,

I'll butt in for a sec. Have you tried a MCLAREN STROLLER? They are a British (I believe) company but sometimes you can get a specialty store that carries them, or will order them. Basically the Mclaren is the same as an umbroller (the fold up ones)but it is made for kids up to 150 lbs. It comes with a five point harness system for those kids who need the support to sit (like my DD). We used one for a few years before we got our wheelchair, her insert seat fit wonderfully into it as well. Shelley
iVillage Member
Registered: 02-16-2004
In reply to: cl_janx7
Thu, 07-22-2004 - 8:58am
Hey Shelley

Thanks for butting in :) I always enjoy your posts. I will look into that company, it sounds like exactly what we need. Now I have another issue. I was having a conversation with my coworkers about getting the stroller for my daughter, and one coworker basically chewed me a new one for even considering it. She said that my daughter is way to big to be in a stroller and I should be ashamed. She also stated that she always hates to see big kids in a stroller. And yes, she does know that my dd has Cerebral Palsy and thinks that is no excuse. I would have loved to just told her completely off, but I knew that wasn't proper work ethic. I don't know what to do. This is really bothering me. Any suggestions on how I should handle this one?

Hope you are having a good day

Nancy
iVillage Member
Registered: 03-19-2003
In reply to: cl_janx7
Thu, 07-22-2004 - 9:22am

Hi Nancy!

 


 



iVillage Member
Registered: 03-19-2003
In reply to: cl_janx7
Thu, 07-22-2004 - 9:25am
Shelley, thanks for buttiing in....glad you had the info, cause I didn't!

 


 



iVillage Member
Registered: 02-16-2004
In reply to: cl_janx7
Thu, 07-22-2004 - 9:42am
Hey Jan!

Thanks for making me laugh, I had forgotten all about the teen years!

I think I psychologically blocked them out lol

I am sure having the pool is a saving grace for you. I think the person who invented the swimming pool and the person who invented the epidural, both need to be inducted into some sort of hall of fame.

I will do a good weather dance for you here in my office :)

Have fun with the barbeque!

P.S. if you hear about the freak rainstorm in a womans office in pittsburgh, know that something went terribly wrong with my dance lol

Take care and have a wonderful summer

Nancy

iVillage Member
Registered: 10-21-2003
In reply to: cl_janx7
Thu, 07-22-2004 - 12:03pm
HHHMMMM.. besides asking your co-worker if THEY would like to come and spell you from carrying the load?! I get (inwardly) upset at people who try and tell us that we have to do exactly the same things for our special needs children as we would do for our "garden variety" children. Your coworker would have a problem with my son being in a stroller then, because he is a "big" kid for his age. He's 18 months and most people think he is 3-4. I think it has to do with his hair (he's had 10 haircuts....not trims around the ears, but actual hair cuts.LOL)

No really, the only come back that I can think of (that is nice) is that you could tell them that the stroller that you are looking at would be of an appropiate size for your daughter. Also you could ask her...why should I be ashamed of trying to figure out a way that my entire family and I can go on outings together and have everyone be in a comfortable position. You could explain that with the size and weight of your daughter that the only way she could be carried is in such a way that she would not be able to "see" things around her, and that you would like for her to experiance the same things as the rest of the family.

I have never actually come across people like this...I know how lucky I am...most people will ask questions about Alicia (if they don't know about CP) but I haven't "met" (as in had a conversation...I have had the looks...to which I look right back, or I turn Alicia and ask her...loudly...to give a smile and a wave!)anyone who has taken exception to my treatment of my daughter(I have had the adive givers though.lol).

Another thing you could do is to ask your coworker if SHE has any suggestions for you. Does she know of a "not shaming" way for you to transport your daughter. Turning it around on people (just act very sincere in the asking) isn't rude and if she can come up with a answer that would work...hey then you found out something. If she cannot come up with a workable solution then you are free to say "thanks for your caring but I know what is best for MY child." HEE HEE...I love being able to do that to those who think they know what's best.

If you have problems in handling anything you can always say "that my daughter's Doctors and I have been in discussions about this, and we all agree that this is the proper action to take." Unless they know your Doctor personally, this is a great way to "stop" the advice, no one seems to want to take on a Doctor and their views. It's only the parent that they think they can push around...they forget that we live this everyday adn ususally know even more about our children than the Doctor does. I have a really good Doctor for my daughter, and HE takes my opinions very seriously, so I always feel more empowered when I come across people who THINK they know best.

I always use "I know my daughter the best" mentality in my actions and reactions with people. Keep telling yourself this and respond accordingly...if they are down right rude you can usually be polite with one of the previous answers (Doctor...etc)BUT you CAN throw alot of emotion into the saying of the words...enought that most people will get the picture. It didn't work with my grandmother, because she can't get out of the "poor baby ALicia" stage (she forgets that poor ALicia has had CP since birth and doesn't know any different way of life...she only knows what "we" make of her CP...I choose the so what we'll just do things differently approach), so we have the "this is what is happening and that's all I want to hear about it. Keep your comments to yourself, because they won't change anything." type of relationship going now. That way I can tell her what is going on and then she comments to someone else not me or ALicia.

SO now that this is WAY too long I'll sign off and let you get on with your life. Good Luck SHelley

Pages