Please help me
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Please help me
| Wed, 11-15-2006 - 1:57pm |
I have a daughter that will be 3 in Feb. and dev. and mentally she's only about 8 months old. She doesn't walk or talk but does crawl. I'm really starting to have a hard time adjusting to parenting her. She's an absolute princess and a blessing to have around but it breaks my heart to know that she's getting too big for me to handle on my own during the day. She's 38" tall and 38 lbs. I'm 5'6" and 135 lbs. My back and arms are aching all the time from lifting her and even though she has a wheelchair for out of the home it's almost more of a pain to use than just a stroller. I was almost in tears this morning because I lifted her up into her highchair and almost broke my back. I know someday I'll have to get a PCA for her to help but at this point I'm just not ready for that. She doesn't really have any medical needs.
Anyways, I'm writing this hoping that there will be other parents out there with more experience that can tell me what your hints and tricks are. How do you make things easier for yourself and what do you use when diapers, high chairs, strollers, etc just aren't big enough for your child? Depends are huge and there's nothing in between.
Thanks for any help,
Jennifer
Anyways, I'm writing this hoping that there will be other parents out there with more experience that can tell me what your hints and tricks are. How do you make things easier for yourself and what do you use when diapers, high chairs, strollers, etc just aren't big enough for your child? Depends are huge and there's nothing in between.
Thanks for any help,
Jennifer
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On the diaper front, I often had students in my class that were bigger than the diapers that they usually make. Adult diapers just won't do, but Overnights by Huggies fit the bill. They are for bigger kids who are potty trained, but still wet the bed. You may want to try those. They are "Pull-up" type diapers, but they really do work well for bigger kids.
As for strollers, one of my former students (now 21) has balance difficulties and her parents purchased a sort of adult stroller when she was a teenager. If your daughter has a physical therapist, they should be able to suggest a company for items like this. IF your daughter has a wheelchair, a wheelchair tray may do the trick for feeding times as opposed to a high chair. I'll consult some people at work and get back to you.
I hope that this helps.
Dawn
My DD age 13.5 has to wear pull ups. I am lucky that her insurance covers this expense. We go through a medical supply company. There are pullups and diapers out there that will work for your child. Here is a link to a med company with some of the different products they sell along with the sizes. http://www.northshorecare.com/pullonsyouth1.html
HTH
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We do have a tray for her wheelchair but she's such a messy eater that she'd have the chair wrecked. I actually just went last night and got her a new highchair that has adjustable height settings. I have her way down by the floor so that helps because lifting her into the highchair is SO hard with her size. I had tried to sit her in a booster at the table but our table is really big and she uses it as a launching pad :o) One swipe of her arm and everyone is full of her food :o) The chair in only rated for up to 37 lbs and she's 38 but I'm hoping she won't grow much for a while since she's so big already.
Thanks again,
Jennifer
Jennifer
Ainsley 8, William 7, Peyton 6 *8p23.1 duplication syndrome*, and Jackson 4. www.onever
Thanks again,
Jennifer
Jennifer
Ainsley 8, William 7, Peyton 6 *8p23.1 duplication syndrome*, and Jackson 4. www.onever
Visit me at
Visit me at
This site has several different seating options. You might need to find out if your Dr. can write you a letter of Medical necessity, so that insurance will cover some of the costs. The equipment can be very costly. http://www.adaptivemall.com/sptoherich.html
Saara mom of Naim 8, Ahsan 6, Ilyaas 18 months, EDD 1/30/07
Hi Jennifer
For our 13 yr. old(she'll be 14 in a couple months), we bought her a giant beanbag chair last Christmas and that thing is great! That is usually what I feed her in at home. It isn't too hard to haul her into it because it isn't high so I can just kinda "drag" her over to it, hoist her into it by straddling her and lifting (with my legs), then I land in the bag with her. Hard to explain in words, but it works for us! Maybe your dd could even crawl into it herself?
The beanbag we got isn't your usual styrofoam pellet filled bag. We used to have one of those for her but it was always needing more pellets added because they get compressed. It is called a Foof Chair. I bought it online, you should be able to find them. I shopped around till I found the best price, I think it was around $100-$120(??), including a cover. It is quite large, you can get smaller ones for less. They are expensive, but really no more than a regular bean bag. The Foof beanbags are filled with chunks of foam and they don't have to be continually filled because they don't compress(not permanantly). If it gets flatter than you like, you just fluff it back up.
I need to get to bed but will try to think of some more ideas for you and post tomorrow!
BTW, I know it gets soo much harder as these gals get larger. My dd is probably around 90 lbs. now(she hasn't been weighed in a few years and was 80 then). I am 5'4" and around 120 lbs. She is nearly my size--SCARY!!
Pam
She started out in the Youth size, which is pretty small. The diapers are delivered to us by UPS every month and paid for by her Medicaid. I think we probably had to get a dr.'s prescription. In NC, diapers are covered, don't know about your state.