Sammy's mental health - very long
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|Wed, 09-15-2004 - 12:10am|
organic mood disorder, secondary to seizures
mood disorder, nos
OMG, there's at least 5 more and I can't remember them all. I've even had a few doctors insist on meds and refuse to give a diagnosis. And one insisted on adhd diagnosis, even when it was obvious she wasn't. IMHO, a truly adhd child will not sit for hours and hours doing a favorite activity without meds. I've even insisted on her getting counseling, as opposed to meds, but she just gets passed around to different drs. Even at the hospital, the refused to work with her, only give her meds. She was on seroquil, and the dose was so high, she couldn't even sit up for more than 5 minutes. Gee, wonder why she was moody and irritable. This has been an onging issue for 4 years. At one clinic, she had one visit with a dr, she passed her to someone else who passed her to someone else, who passed her to someone else who wouldn't even see her. I've been to every clinic my insurance will cover, and I now have the reputation of being in denial, because I pull her out when they overmedicate and refuse her help. They even make "typographical errors" in her file and refuse to fix them. For example, the hospital wrote that I didn't want her on meds and refused to bring her home. I said she couldn't be on Trileptal, because her moods were so out of control. I refused to bring her home on Trileptal. Then they discharged her because 2 acquaintances of mine entered thier kids, and it was obvious all 3 kids were good friends. When asked, I told them exactaly what I thought of the services she recieved - CRAP! So, the put in her file that I was defiant to getting her treatment, all the while demanding they help her. Okay, I admit, I had bad judgement and horrible parenting skills because I objected to her meds being switched/increased every day. I even was horrible enough to think it was unrealistic to expect a preschooler to "cooperate" in group sessions geared towards elem aged kids. You know, sit quietly, not get bored etc. UGH!
So, I've got a horrible reputation and can't fix it. The only way to get her records "fixed" (there were no mistakes, they did this on purpose) is to get a lawyer. I can't afford one, legal aid won't help because there's no "proof" maybe I really am a bad parent. Oh, and I was dumb enough to suggest that being locked up, with no sunlight, no open windows and not getting to go out and play everyday was making her worse.
I think she has a socia/emotional disorder. She hates crowds and gets more shy every year. Currently, she is not eating and crying constantly. Her new school is too crowded and nobody likes her. I know school just started and it's a huge school, but this has been going on for years. She cried everyday last year because she had to ride the school bus and eat in the lunch room with the rest of the kids. She used to be very outgoing, the center of attention. She made friends wherever she went. She didn't hesitate to join in a game or play with kids she didn't know. Now she refuses to even say "Hi" to anyone that isn't a long time friend. At the park, she refuses to play if there are other kids around. She will sit on the swings and demand to be left alone. She plays with the 2 girls at the bus stop, one is her classmate. She refuses to talk to this girl at school and cries when I suggest they could play after school. Yet this little girl is her friend? She cries almost constantly, even at good things. I've been told the kids at school are nice to her, they're aware of her special needs and treat her more like a younger sibling than a peer.
Just some background on friends. Her "best" friend at 2yo was severly injured, spent 2 years in rehab, then died. Her next set of friends moved out of state shortly after she met them. The neighbor boys moved away, her other "best" friend moved out of state, and 2 little boys we just got reaquainted with moved after living next door for 6 weeks! All our efforts to help her make friends have failed. I just dont' know what else to do. I'm convinced she has an emotional/social disorder. The doctors refuse to see that her behavior is no longer a problem. Sure she misbehaves sometimes, but don't all kids? The refuse to reevalute her, and give appropriate treatment. I'm just they type of mom that doesn't know anything according to them. Oh, and my dh is just convinced she's faking all of this and I'm spoiling her. This is now his answer to everything. That she's faking, not trying, acting stupid or retarded etc. And since he's the man, the dr's will listen to him over me. He's told them that I baby her too much. Unlike him, I dont' yell at her and call her a dummy if she trips and falls or makes mistakes, even if she should have known better. This is how I spoil her according to him. Oh, and I let her cry when she needs to, and have plenty of hugs when she's had a bad day. And my dh, that I love dearly (although sometimes I'm not sure why) doesn't understand why our marriage is suffering. Needless to say, I don't have much support on this. I feel like she's only getting worse and I'm out of options. What can I do?