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|Thu, 03-18-2004 - 10:10am|
My name is Tracy, and I'm the single parent to 3 wonderful(most of the time) children. I have a few issuse with my kids. My oldest DD is 12, followed by my dx'd SID/PDD-Nos 4 yr old DS, and at the back of the pack is my 18 month old angel.
I guess I'm writing here, because there really isn't another board that this seems to belong in.
My question is for my 18 month old DD. No one has given me the exact medical terms, so bare with me. My DD has problems with her forearms and hands. The hands are due to be fixed this year. No really a big deal. Her arms are my problem.
My DD has what they call radial deviation. Causing her wrists to turn. We have tried OT corrective therapy and splints. However, the problem results from one bone in her forearm being shorter than the other, pulling her hand in. If you'll pardon the comparison, she carries her hands like a child with muscular prbolems that has cerebral palsey. Awful comparison, I know. There is just no other way to describe it.
Her ortho says that they can't be fixed until she's about 12. My question is this. The Shriner's want us to go to spokane. We live in Alberta. The idea appeals to me but I'm Waging the battle of...if I take her and nothing can be done and her Ortho finds out, they won't touch her. I want to go, but is it worth the risk? We have no Ortho ped specialist where we live. So my options are limited. But, is it fair to her to be using therapies that really aren't working.
I'm so confused as to what to do. Any insight? Any what I'd do senarios(sp?)?
Any input would be wonderful.