Update on our genetics appt...

iVillage Member
Registered: 02-19-2004
Update on our genetics appt...
4
Thu, 10-21-2004 - 9:24pm

Yesterday we visited my son's geneticist.

iVillage Member
Registered: 03-19-2003
Fri, 10-22-2004 - 10:02am

Sandra, waiting is the hardest.

 


 



iVillage Member
Registered: 02-19-2004
Fri, 10-22-2004 - 8:58pm

Thank you Jan.

iVillage Member
Registered: 03-26-2003
Wed, 10-27-2004 - 7:44am
Waiting is the worse, I have been waiting for a dx for 16 years. However, not having one has not really changed things. We chased a dx for years and now occasionally see her neurologist who will come up with a new blood test for something, everythign has always come back negative. THe only real problem is we have to have a dx for insurance purposes so as far as they are concerned she has muscular dystrophy, the school also has the same dx for lack of a real one. We went the geneticist route with no luck, hope yours comes out better. But, in the end, no dx has not been the end of the world just an annoyance.
iVillage Member
Registered: 02-19-2004
Sat, 11-06-2004 - 5:23am

Thanks for writing.