your story

iVillage Member
Registered: 10-29-2003
your story
4
Fri, 02-16-2007 - 8:35pm
Tell us your story of when you found out your child had "special needs"
"Don't let school get in the way of your education"

iVillage Member
Registered: 04-28-2005
In reply to: saddiebrown
Fri, 02-23-2007 - 1:40am

At my 17wk u/s

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iVillage Member
Registered: 10-29-2003
In reply to: saddiebrown
Mon, 02-19-2007 - 3:34pm

First lets start by saying all children are special and all have needs that are special. just some require more help along the way.

I was first told of my dd failed her newborn hearing screening when she was two days old. i held her as the repeated the test and got the same results. Miss Olivia was one month ond when we were told she had a mild/moderate hearing loss. After repeating the ABR getting second opinions and changing doctors I felt we would recive better care and info at Children Hospital in Boston Nothing but the best! She recived her hearing aids at 4 months old and is doing great. She had a sedated abr at 8 months and now does the behavorial test in the both every 3-4 months. We go every six for hearing aid molds and she has speach every week. Miss Olivia also had tightness in her hands feet and neck she is recovered from that we had our last OT appointment last week she will be by in a few months to check on us but No more OT!! My ds who is 2/12 hit all hisa speach mildstones early first word at 10 months and a bunch of single words by 18 months. as he but more and more words together he was harder to understand I talked with DD OT she said to call and have an eval. done he now has speech everyweek Cam had his hearing tested and he does have a mild loss. no aides are needed right now. More tests to come!

We are all learing ALS and all about hearing aids. Granma just got one too!! We should find out more soon as to if there loss will be progressive or stay the same. We take each day at a time and are thankfully we are trully blessed by the Lord. For he gives me the strenght.

"Don't let school get in the way of your education"

iVillage Member
Registered: 02-05-2007
In reply to: saddiebrown
Mon, 02-19-2007 - 9:56am
Hello. I'm new to this. We found out my ds Anderson, 4, has a moderate SN hearing loss. We are waiting on hearing aides. It's been a long and overwhelming process. It started with a speech delay. Looking back I never would have guessed. He babbled early as an infant and met all of the "speech milestones" It was after his 3rd b-day that I started getting concerned. His speech wasn't clear like other children. We found out that my husbands sister wore hearing aides as a child. I would like to blame my husband for not telling me this sooner but he is 10 years older than his sister and he didn't even remember. Anyhoo, we are now getting him the help he needs. Speech therapy once a week and very soon aides. I also have a 2 year old dd Amelia. She is my sweetheart. She was born with several heart defects and had open heart surgery when she was 13 days old. She has been fine since the surgery and is now being checked every 6 months b/c she still has stenosis of the aortic valve. She will need a cath. in the future we're told. My husband and I are on pins and needles every time we see the cardiologist. All of this sometimes seems a lot to deal with but it has made me very strong. Before my dd was born I worried about the little things and was quite neurotic with my ds. Now we just take one day at a time and I know I am blessed with 2 beautiful children.
iVillage Member
Registered: 08-20-2004
In reply to: saddiebrown
Sat, 02-17-2007 - 9:21pm
It's a really long story. I found out when I was 11 weeks pregnant with her. They said to terminate because she'd never live an hour. She'll be two in April! Visit her website at http://luslilangel.tripod.com/ to learn more and see pics!

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