Any Advice!?

iVillage Member
Registered: 01-26-2007
Any Advice!?
4
Mon, 02-19-2007 - 8:43pm

My 2 mo DS was just officially diagnosed with mild to moderate.

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iVillage Member
Registered: 02-05-2007
In reply to: ajsmommy1214
Mon, 02-19-2007 - 9:06pm
My ds is 4 and has mild-moderate. He is waiting on aides now. Some days he complains that he can't hear and some days he thinks things are too loud. He met all of the speech milestones. It wasn't until he was 3 that I noticed he was having difficulty getting things out. One day I forgot to send juice to pre-school and the teacher said he was trying to tell her about his shoes. Being his mother I knew exactly what he was telling her. I don't have any Juice. My husband is big into auto racing, motorcross etc. and ds is getting a dirt bike for his 4th birthday. His ENT said that it is fine to get him into motor sports. Baseball should be fine. I also have a 2 year old dd who failed her newborn screening and was recntly tested and is fine. It is very overwhelming and I'm just starting all of this too. I can tell you this, I would have never guessed my ds needed aides. I could be reading the paper and whisper his name and have him say "what mommy". I think with mild/mod it's almost like selective hearing. If you find anything out let me know.
iVillage Member
Registered: 10-29-2003
In reply to: ajsmommy1214
Thu, 02-22-2007 - 9:20pm
Hello
My dd is now a year and has a mild to moderate hearing loss. She has bilateral hearing aids and does well with them. we went through a time of her eating then around thanksgiving, one had to get sent in for repair. we were very firm but gentel with NO EATING HEARING AIDS we would say loudly but no yelling and we would sign "no eat"

Get a clip asap eargear gearforears.com are great they cover the hearing aid and clip to there clothes so they don't get lost if the fall out or get pulled out. the sooner the better for the aides for lanuage dev. and getting use to them being part of them.
my dd signs 3-4 signs and says 5-6 words. mama daddy saddie (the dog) bye, thankyou, more and no have been said. her speach is not close to perfect she misses begining and end sounds ex saddie addie bye is by thankyou is hakuoo but shes trieing just like any 12 month old would be. she sign more milk wantplays pattycake gives five peek aboo. and tries to say boo. We signed up for thefamily sing language program in our state they come to the house and it is free for two ten week sessions, DD also does Early intervention speech, she had some ot for tight muscles but is done with that.
We just found out my older son 2 1/2 has a mild loss but we are just watching him at this poit he has EI speech but no aides he might not need them right now in school he will have what is called an fm system.
I expect both my children to take karate classes and play sports and just be regular kids. We may need to help them with coping statagies. But I am thankful everyday they are hear, even at 6pm when I am sitting in traffic on the may home from picking up hearing aid molds,
You will be surprised at how fast your little one grows and needs new molds made we are still every 5-6 weeks.
fight fight fight your insurance comany to pay for the hearing aids the are necessary for your ds develpoment and they don't have the right not to pay when I have time someday I am going to work on this cause.
sorry this is so long if you have questions this is a great board.
also go to signing time web sight. and look on your local pbs chancles for signning time they also have videos and you can get then at the library .
"Don't let school get in the way of your education"

iVillage Member
Registered: 01-26-2007
In reply to: ajsmommy1214
Fri, 02-23-2007 - 6:40pm

Great advice!

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iVillage Member
Registered: 03-25-2003
In reply to: ajsmommy1214
Sat, 02-24-2007 - 12:09am

Okay, Teacher-Advocate side of Dawn is coming out here...

DO NOT go into your child's IEP meeting thinking that you are going to have to purchase assistive devices. If the IEP team, which includes you, determines that he needs an assistive listening device (FM system) in order to access his educational program, the school district will need to provide it and maintain it. Please be sure to talk to your school district's special education director or deaf education coordinator. School districts are required, by law, to provide assistive technology, as needed, for students with disabilities -- this includes FMs -- whether the child is in a completely inclusive setting or in a special separate class.