Anyone knows about Waardenburg syndrome?
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|Tue, 09-11-2007 - 6:30pm|
My son has waardenburg syndrome, its a fare condition that in known for hearing loss and pigment abnormalities and other symptoms. My son just turned 2 and was tested for hearing loss AT 6mnths and 1 year and he seems to be fine. They were unable to a complete hearing test due to his age, I think that is what I undertood from the docs; but he seems to hear fine. The one major question that I have is that can your hearing get worse, even if it seems normal now, w/ waardenburg syndrome? I asked docs about this and primary ped thinks no, but the doc who checks hearing says yes. I cant find answers on the net.