new here.........with question

iVillage Member
Registered: 11-16-2006
new here.........with question
2
Sat, 04-21-2007 - 4:20am

Hi all,

I am usually over on the hypotonic boards but I am in real need of help here now.

My daughter Mya has been in hearing aids since she was 6 months old, she is 16 months now.
She failed her newborn test, couple of abr's and had tubes at 3 months. They didn't help. she still failed her abr at (mild/moderate) at age 4 and 5 months so at 6 months she was in hearing aids. She did very well with them for a while. I used the skin adhesive with the clips and she played with them a little but for the most part left them alone. But the older she gets the move she pulls them out. Now at 16 months unless I am right in front of her telling her to leave them alone she pulls them out. I used the 2 sided tape and all that did was kept the HA attached to back of her ear, she would pull out the mold part and unattach it and play with it. So now I have resorted to actually putting tape over her ear mold, tubing and 2 sided tape on the HA. That worked really well for about tw0 weeks. I was so happy. She actually kept them in all day!!!!! But know she has figured out how to pull the tape off then pull the aid out,

I don't know what else to do. I even tried duck tape........yes duck tape. I really want these things to stay in her ear. She really isn't saying any words yet. Although she has said mama, dada, uh-oh, bite, and she uses 4 or 5 signs regularly- more, go, my turn, stop.

Does anyone have any suggestions. I know these things can be bothersome sometimes but she has got to get used to them!!! I thinks she understands that, but to her they are to much like a toy she can pull out and play with.

Oh- a little history. She has never been diagnosed with anything, and we have no idea why she has the hearing loss, but does have low muscle tone, bilateral hearing loss, and some dev delays. Ofcourse we are doing private PT and ST and AR therapy and also doing PT, OT, ST and hearing therapy through EI.

iVillage Member
Registered: 03-25-2003
Sun, 04-22-2007 - 11:32pm

Hey there!
Welcome to the board!

I taught students with deaf-blindness, so here is what I have learned from experience...

My students had very limited expressive communication skills, so we often had to look at behavior to figure out what was going on with them if something seemed a little off. I had one student who, would constantly pull his FM off. Dutifully, I would put the earmolds back in, remind him that he needed to wear his FM in school, etc... Well, one day, it occured to me to check the FM. I checked them every morning, but I decided to check his when he pulled the earmolds out. So, I got out my handy-dandy stethoscope-thingy and, lo and behold, he was getting nothing but static. I felt awful and apologized (he laughed at me -- really loud) and had the audiologist check all of my FMs when she came in that week. Turns out it was my microphone, not the FMs -- that is why they were okay during the check, but not during class... From that point on, I started checking them on FM and on HA... Same student also chucked his very expensive glasses across the room and when mom took him to the eye doc -- it was time for a new prescription...

The moral to this story... Since your daughter is very young, it might be that the hearing aids are either not benefitting her or are giving her too much gain (Maria can speak more to that).

If that is not the issue however... Hmmmm...She is a bit too young for a reward system, but you might try it -- for every 10 minutes (or whatever amount of time she normally keeps the HAs in) she keeps the aids in, she gets something she really likes (my students worked for piggy back rides or a few minutes of dancing). As she meets the original goal, increase the time.

I hope this helps!

Dawn

iVillage Member
Registered: 03-24-2003
Mon, 04-23-2007 - 8:59pm

Hi and welcome.

Maria :)