Officially diagnosed

iVillage Member
Registered: 01-05-2007
Officially diagnosed
5
Thu, 01-25-2007 - 8:55pm

My son Mitchell (9 months old) was officially diagnosed today has having permanent signifcant hearing loss. There were no measurable readings in his right ear (profound loss) and his left ear has severe to profound loss. I thought I was prepared for it, but it still stung to hear the audiologist give us the results today. With his level of loss, the audiologist did not sound too optimistic that hearing aids will help him, but we are going to try them first. I suspect Mitchell will end up needing a cochlear implant to develop speech. It's been a tough day - I hope there are brighter days aheaad.

Jennifer

iVillage Member
Registered: 03-27-2003
Fri, 01-26-2007 - 8:12am

Hi Jennifer,

My thoughts are with you and your family. I do understand how overwhelmed and confused you must be. It is a lot to take in at first. As much as you may suspect something, I don't believe you can ever fully prepare. Even though we suspected our son had a hearing loss, it was still an overwhelming shock to us. That was 6 years ago!! My son is bilateraly aided and we've come far since then.

Since Mitchell is so young, you have time on your side. I know there's another mom on this board considering a cochlear implant. Like our board CL posted to her, make sure all the results are accurate and conclusive. I don't think they perform CI on children younger than a year unless things have changed.

Again, please know our thoughts & prayers are with you. Keep us posted on Mitchell's progress.

Gina

iVillage Member
Registered: 01-26-2007
Fri, 01-26-2007 - 11:16am

Hello!
I understand what you are going thru right now. My son was diagnosed with mild to moderate hearing loss. But not without a roller coaster of emotions that went with it. We went from specialist to specialist to specialist and will be going to another specialist after the 2nd specialist said we needed to go to get a 3rd opinion because they were not happy with the results. So its been crazy.
Let me give you some hope though-
I am a school teacher on maternity leave now. I have a student who we were told had hearing loss so we had to put her in the front of the class room and wear an FM system for her. She got great grades, excelled in sports, and just is a wonderful girl. When I found out that my son had hearing loss, I thought of her mom so I emailed her asking for advice. She informed that her daughter had that same loss as your son. I was SHOCKED that she has the same loss because she functions so well. I asked her parents what the secret was....She told me that her and husband just stuck together and got help immediately. Early intervention and all medical break thru available. So hopefully that helps. I think of her when I get down in the dumps too.

I know with my problem is (and maybe you can relate) I am super paranoid about every other little thing. I haven't seen a smile in my son (he's 6 weeks)....he hates tummy time and only lifts his head with help....so I of course almost don't enjoy my son because he has "one strike" against him and I just worry about him constantly.

I am very thankful to have a board like this though because it helps!! I really hope that I have helped alittle??!!!
My thoughts and prayers are with you. I pray everyday for different things so God must think I am his stalker. LOL
Keep me posted on his progress.
Alison :)

Photobucket

iVillage Member
Registered: 01-05-2007
Fri, 01-26-2007 - 10:36pm

Thanks, Alison and Gina for your encouraging words.

Alison - I know what you mean about a roller coaster ride. Mitchell failed the newborn hearing screening on his right ear so we have been going through testing ever since then. One thing that is so confusing to us is that his loss seems to have been progressive. He used to pass the tests in his left ear, but now most of the hearing I think he had in that ear at one time is gone. I also know what you mean about constant worrying. Mitchell also has low muscle tone and is delayed in his gross motor development. He is just now starting to sit up and crawl on his belly. He is such a happy little boy, though! I have also have a 3 year old (he does not have hearing loss) and Mitchell's face just lights up every time he sees Tanner. I remember those agonizing first weeks waiting for that first smile or reaction - I hope you don't have to wait too much longer for it!

Jennifer

iVillage Member
Registered: 01-29-2007
Tue, 01-30-2007 - 8:36pm

Hi Hokie97

I wanted to tell you that you don't have anything to be worried about. I was born with a lot of hearing loss and it was a such crisis for the both of my parents at first.

But look how I have turned out. I'm in high school now and I enjoy doing stuff like other capable teenagers out there.

Anyway, the point is that Deafness may be a gift not a disability if you choose to look at it that way like I do.

So here's my suggestion, DO NOT LISTEN to the audiologist. Does she/he really know what's best for him based on his whole happiness and health? No. You only know what's best for him, hokie97. Reach out to your heart. Listen and decide if this is what you really wanted for your little boy, Mitchell.

Second of all, wait until he's old enough to decide if whatever he wants a cochlear implant or not. Trust me on this. The children with a hearing loss have a right to make a decision based on this since they do know what they want.
I'm not trying to be offensive, I'm just trying to be realistic.

Lastly, if you ever have a problem with developing speech, maybe it would be best to use sign language (ASL- American Sign Language) at first to avoid frustuation and anger. You can wait a little more longer and see what happens when he's a little bit older.
If he's doing great, then fine. That would be great.
I think you should start using ASL right away if you're thinking about it so your son could have a capable language development before he enters school.
To start ASL, at least use the basics at first because they are easy to learn. A baby's brain is like a sponge so he'll need the good structure to contiune his language development as he gets older.

Hokie97, I know there will be brighter days ahead of you and your son. Sure, it may be hard at first but the more you're learning how to deal with this situation, the more better it gets.

Hang in there.
You are in my prayers.

Thank you.
Kit-Kat

--Kit Kat, the loving Fur Mama to Two Socks and Fur Angel, Spike.
iVillage Member
Registered: 02-23-2007
Fri, 02-23-2007 - 4:31pm

Hi Jennifer,

YES - there are brighter and better days ahead. You need to take one day at a time. I know that doesn't sound very helpful right now, but, one day at a time, one hour or minute at a time if need be.

I have a daughter who was diagnosed profoundly deaf in one ear and partially deaf in the other. Eventually her condition was diagnosed (menieres disease). Hearing aids were used for many years and now, a cochlear implant. Aimee, my daughter, went deaf twice through this process, learned sign language and saw many speech therapists.

One day at a time. Only special parents are given special children. You must be special and you CAN endure this...

Stay happy - keep your chin up.. things will get better..

Patti

Feelings and Logic, a mothers journal