Apraxia

iVillage Member
Registered: 02-23-2005
Apraxia
2
Tue, 09-18-2012 - 1:50pm

Hello all I am new here.  My son is 6 years old and has been in speech therapy since he was 3.   The other day at church his sunday school teacher was telling me about something he said and, outside of his hearing, I asked if she had difficulty understanding him because his new kindergarten teacher is having a lot of trouble understanding him.  She said she could understand most of what he said, but then her son has apraxia to.  I was kind of floored because I had never heard that term before.  I came home and did a little research and contacted his old speech therapist from his preschool.  She said yes she does believe he has apraxia and also dysarthria.    She said however that this diagnosis would not have changed his therapy, but if she were me she would let his new therapist know just in case.    I know nothing about any of this.  All I know is I have an intelligent little boy with so much to say who has so much trouble getting his words understood outside of the house.    I don't know what my next step is.  Would you contact his doctor to get him formally evaluated, or rely on the school and their tests and therapies?  I don't know if it would be best to get him extra speech on top of what he gets from school or not???  And I am not sure I believe her that this would not have changed his therapies for the last 2-1/2 to 3 years.  For one thing everything I have read says that one-on-one speech therapy is best for this and for the last year he has been getting group therapy.    Anyway just wanted to see if anyone has any ideas about next steps. 

Christina

iVillage Member
Registered: 05-18-2005
In reply to: schristy2005
Tue, 09-18-2012 - 6:36pm

Where do you live?  Here in NY the process to get speech therapy involves a formal evaluation and report, followed by recommendations and a meeting to negotiate and plan services.  They rarely give diagnostic labels to the kids evaluated, leaving diagnosis to MD's rather than ST's, OT's, PT's etc. who do the evaluations.  Rather, the reports are functionally based.  Can you ask for an evaluation from your school system? 

Gwen

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iVillage Member
Registered: 05-02-2004
In reply to: schristy2005
Sun, 09-23-2012 - 10:18pm
If you can get a diagnosis through your insurance it may be good for getting what you need through the school, though the school may insist on the group therapy. Extra therapy cannot hurt (in my opinion) and I have done both school and private at the same time in the past.

My son was originally diagnosed as having Apraxia. Later I was told it was muscle delays, not the disconnect with the brain like apraxia is supposed to be. The muscle delays did make sense as he also had issues with fine muscles for the eyes and writing. At kinder age (we homeschool) my son was doing therapy at the school and had another child coming in with him. The school tried to do group therapy as much as possible, which, as long as I got a report on what they were working on, and what I could do to help at home, I was happy.

It may be that you get a better idea of what to do at home if you do private as well as the school. Ask to have a couple of minutes to go over homework with the therapist before she meets with the next client. Schools with the kids in school have a harder time getting this stuff home to the parent. As a home schooler, I do the same as with private - I ask for a couple of minutes to go over what we should do in the coming week.