Thank-You from me and Kira

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iVillage Member
Registered: 03-28-2003
Thank-You from me and Kira
3
Fri, 06-06-2003 - 9:06pm
Thank-You for your prayers and words of support. For those familar with us and our story you know how hard this wait is on us right now. For those who aren't , but were kind enough to include us in thier prayers, Kira is an 18 month old that has had seizures since 7 weeks old, she has developmental delays, a cortical dysplasia (part of her brain didn't develop right )hypotonia and a brainstem tumor. This tumor and the reason for her seizures were being evaluated by an MRI this week. This MRI was very detailed and hopefully will lead us to some answers and treatments for her problems. We will not get any answers for two weeks.. Kira amazes me by what she accomplishes on a daily basis and is the little light that brightens my day.

Anyway, I don't get here much and I miss talking with you. I do keep an online journal with regular updates and my rantings on my daily events. If you want to keep up with us feel free to e-mail me for the link.

Thanks Again for your much appreciated support and prayers.

Nicole

Mom to Lindsay 6, Alex 5 and Kira 18 months (in two weeks

iVillage Member
Registered: 03-27-2003
Sat, 06-07-2003 - 1:02am
Hugs and Kisses to you and the kids! I keep praying for Kira!

Janet =)

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iVillage Member
Registered: 03-26-2003
Mon, 06-09-2003 - 2:22pm
I think of you, Kira, and the rest of your family often.

I would love the link to your journal, I tried to e-mail you but it was returned, I must have an old address.

you can e-mail me at Klewis025@hotmail.com

Kris, Shelby(2/99), Taylor(3/14)

iVillage Member
Registered: 03-25-2003
Mon, 06-09-2003 - 10:00pm
Hey Nik...

It was great to hear from you....I hope that the findings are what you and your family are looking for....and you are in my Prayers daily! Hugs...and smootches to Kira!

Lisa