Changing the Name of PCOS?

Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Changing the Name of PCOS?
3
Wed, 02-13-2013 - 3:31pm

A panel from the National Institute of Health have said that the name PCOS causes problems and confusion when diagnosing and treating women.   It focuses on one criteria of the disorder, ovarian cysts, which don't necessarily conclude a diagnosis or even occur in all women with PCOS: 

"The name PCOS is a distraction that impedes progress. It is time to assign a name that reflects the complex interactions that characterize the syndrome. The right name will enhance recognition of this issue and assist in expanding research support," said Dr. Robert A. Rizza, panel member and professor of medicine at the Mayo Clinic in Rochester, Minn.

Read more: http://www.medicalnewstoday.com/releases/255343.php 

I know there are a lot of women on these boards with PCOS, and it's a struggle to get the diagnosis and proper treatment.  

What do you think about this change recommendation?

iVillage Member
Registered: 08-01-2012
Tue, 03-26-2013 - 3:15pm

It makes sense to me. My PCOS was overlooked for at least two years because no cysts showed up on my ultrasounds. But I obviously had it, and if my doctor had focused more on the other symptoms, like missing periods and hirsutism/losing scalp hair, I could have gotten treatment before I ended up riddled with 13-15 huge cysts and in constant pain.

Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Mon, 03-04-2013 - 1:22pm
What kind of symptoms were you having?

iVillage Member
Registered: 01-01-2008
Sun, 03-03-2013 - 11:49am

I think it needs a new name. When my fertility doc said she wants to run tests because she thinks I have it, I thought she was crazy. Then I did some research online and learned she's not all that crazy afterall ;)


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