Didelphic uteruses

iVillage Member
Registered: 07-22-2008
Didelphic uteruses
3
Mon, 09-16-2013 - 9:22pm

My daughter was just told she has 2 uteruses and crevices with some umbrella like surrounding that creates a septum in between the uteruses. Has anyone dealt with this. Doctor is optimistic she can have a child but will be high risk and have a 70% risk of miscarriage. Please let me know if anythis has experienced this and your life with it. Thanks!  He told her to start trying to get pregnant sooner than later because of the miscarriage risk. 

iVillage Member
Registered: 03-25-2010
Thu, 09-19-2013 - 12:35pm

Also wanted to add that it is not uncommon to get an incorrect diagnosis with MAs. Most doctors including OB/GYNs did not have a lot of training on MAs in school or practice. MAs are uncommon (4-5% of women, I think I've seen in studies). That is why it is so important to seek out an experienced RE/RS to get 1) an accurate diagnosis and 2) a good plan for moving forward. I highly recommend that your daughter visits those sites I mentioned. It is very helpful to become more informed. I would not have my DS otherwise.

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iVillage Member
Registered: 03-25-2010
Thu, 09-19-2013 - 12:28pm

I wanted to pass on a few good websites if you don't already have them regarding Mullerian Anomalies (MA), which didelphic uterus is a type of MA. At first I was told I had a heart shaped uterus (bicornuate) but actually had a septum. I would highly recommend looking into it further with an experienced RE/RS (not just any RE/RS), especially before your daughter TTC. The blog has pg success stories and both are really great places of accurate, reliable information. The yahoo group is like an iV group specific to MA. If you have any questions, I'll be happy to tell you what I can. I know how hard this is to hear, but your daughter is not alone.

Also, FYI there is a link of MA's and renal issues.  Both the reproductive system and renal system form at the same time in utero.  Sometimes they go hand in hand, but that isn't always the case. Your daughter should probably have her renal system checked as well (ie: that there are 2 functioning kidneys).

 

A nice thing about joining the Yahoo group is that there is a consultant (RE specialist in MAs) to whom you can email your HSG or other images and see what he/she thinks and ask other questions.

By the way, I'm not sure how your daughter was diagnosed but doctors have been wrong about MAs before (they were with me, and not uncommon). MAs are not very common and most docs, including OB/GYNs did not have much training about them in school or in practice. This is why it is so important to seek out an experienced RE/RS to get 1) an accurate diagnosis and 2) good plan for moving forward.

Here they are:

MA yahoo group

http://health.groups.yahoo.com/group/MullerianAnomalies/

MA blog

http://mulleriananomalies.blogspot.com/

HTH!!

Lydia

Me(33), DH(33)...Our TTC journey:
~1993: incorrect Dx of bicornuate uterus (BU) on u/s
September 20, 2003: begin wedded bliss! (on BCP)
Fall 2007: HSG results consistent with BU
Fall 2008: here we go, bye-bye BCP
November 2008: DH in hospital, me ?ChemPg/horrid AF
Winter 2008: back on BCP
Spring/Summer 2009: last chemo, radiation for DH
January 2010: start prenatals, waiting
March 2010: green light to TTC, see ya BCP
April 2010: BFP (4/1), beta ~900 (4/2)
May 2010: m/c (5/30) @12w5d
June 2010: regrouping, septum (SU) vs. BU
September 2010:  Dx via lap/hyst of SU, resected (9/20)! multiple uterine polyps found, removed; Dx mild hyperthyroidism; waiting
December 2010: more polyps removed (12/17), more waiting
January 2011: (1/28) green light for TTC!!!

June 2011: (6/30) BFP

February 27, 2012: DS born!!!

September 2013: after checking thyroid bw and uterus for polyps…given green light

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Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Wed, 09-18-2013 - 2:09pm

I haven't personally dealt with this, but used to work with a girl in this type of situation.  I would suggest that she speak with a specialist, and be monitored closely by her doctors.  My co-worker was unable to carry a pregnancy, but I don't have all the details on how many times they tried.  They went the adoption route instead.