Stupid test results!
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|Wed, 07-02-2008 - 6:16pm|
Well, I got a call from the hospital today at 6:30pm (never a great sign). My results are in.
They went through a lengthy intro... your natural risk assessment at 42 (43 at time of birth) is 1:40 for chromosomal abnormalities, blah, blah, blah...
Based on your testing, we are adjusting your risk assessment to 1:59 (!?!).
So, being well informed about these tests and having been through two prior pregnancies and having weighed several risk assessments... I start with the questions:
If my first blood work showed a "fine" result (you will recall that this same Risk Assessment Coordinator referred to my last blood test result as "fine") and the maxed out U/S showed perfect results and no markers for Downs or other similar chromosomal problems... how did we get to a risk assessment of 1:59 - which I added wasn't too reassuring.
It is some mysterious combination of the three scores... and she wouldn't give me the individual scores. So obviously this most recent test must have come up with a fairly not so great score. That doesn't actually worry me all that much, as this test has a huge rate of false positives and also I read a recent NEJM article stating that the results of the early tests are far more accurate than those taken 18-20wks.
Next she advises that with a clean US, they can reduce my risk factor by an order of 5; meaning the risk of chromosomal abnormality becomes approximately 1:300 (same as at age 35). So, the best risk assessment on paper that I can get is 1:300 (admittedly a third of 1% - but higher than I anticipated).
We are in for the regularly scheduled US with the Neonatal Radiologist I really like on July 10th. I'm saving the rest of my questions for then. He will give me the straight goods. We can discuss the scans. I am pretty sure he'll give me the individual results of the then 4 tests... and we can figure out if amnio is where we are going. It would certainly answer some important questions.
With my last pregnancy - when I was presented with my odds/risks - I asked him directly, "If I was your wife and this was your baby - would you want an amnio to be performed?" He said no, the risk outweighed the odds of any problem being detected and the risk of a problem was very remote in his opinion.
So, that's where I am. A bit of a different place than I had hoped, but not yet in a disasterous place either. More info is needed, and more info is coming.
As an aside, I find it a bit infuriating that I cannot easily just get the individual scores of each test. I think this probably is against the requirement of informed consent for these procedures. I certainly know a few women who have refused the testing due to the assessments being so arbitrary and often inaccurate.
I'm still feeling very good about things... but I wouldn't say no to a few P&PT that everything is normal or better!