RE questions about testing

iVillage Member
Registered: 05-06-2004
RE questions about testing
5
Fri, 07-23-2004 - 2:51pm
I just started taking Chinese Herbs after seeing an acupuncturist. I am going to be followed by Randine Lewis who wrote The Infertility Cure through phone consultations after being examined by her partner in Houston. My question is that the day after I got back from Houston, I had my first appointment with an RE. He told me that he would not typically treat me since I only had one loss (but I have had two). I guess he did not think losing a child at birth was relevant which was definitely a tremendous loss for me. He was trying to be nice and say he would do tests because I was asking him to. The only reply I had was that I am not going to lose another baby. My point was not move forward trying to conceive until I am as healthy as I can be. It doesn't make any sense for me to try to get pregnant and lose 2 more babies to fit their protocol of 3 losses! So, he said he felt the most he would do is the biopsy of the lining, which would be in about 2 weeks. Then next month take the Clomid and test the follicles (FSH test I think), and then put the dye in the uterus to look for blockages. How could I have a blockage if I just got pregnant in May? And is it safe to put dye inside your uterus?

My biggest question is in your opinions, does it make sense to have these tests before the Herbs and Acupuncture is just beginning? Wouldn't taking Clomid possibly mess up taking the Herbs? Can't doing that biopsy hurt your uterus somehow? I have what is called a 'cold uterus' in TCM. That means that my lining just might be not where it needs to. So, shouldn't I take the test when I think I have improved?

Don't know if you can answer any of this, but what if I am just setting myself up for all this bad news when if I wait a month to improve the tests might just show a positive outlook. Do I really need a doctor to tell me I can never have a baby when he really could be absolutely wrong! What would I expect from those 3 tests? It sounds very painful.

Thank you everybody,

Mary

iVillage Member
Registered: 11-30-2003
Fri, 07-23-2004 - 9:24pm
Hey Mary...wow, lots for you to think over. I am always of the mindset that once you are 40+, each and every month counts. I don't want to miss a cycle, while in the mean time I am trying new approaches and ways to improve my health. For example, I began eating organic food at the beginning of May. Everything I read said you don't really notice full results for about 3 months...so I still tried in May & June...this month we are starting IVF. I am still sticking with the organic food and figure every little bit helps.

Sadly, having a m/c when you are 40+ is more common than any of us would like. I am on several boards...and the reality is women who are 40+ do have more m/c's in the first trimester than women in their 20/30's. That's not to say we shouldn't try to treat our symptoms and/or do what we need to make ourselves as healthy as possible.

I have had the dye in my uterus to test for blockage. I agree if you were just pregnant, this may not be necessary...but if it clears anything out, it just improves your chances. I found the test somewhat uncomfortable...but not unbearable. I have to say, my RE said he found no blockage. I have heard if there is blockage, the test is more painful (but of course, if that's the reason you can't conceive...well worth the pain.) I am not familiar with the Clomid challenge (although I did take Clomid for 6 months) or the biopsy of the lining. I personally did not like the Clomid. I had one month where I had a cyst and we had to skip that cycle. The main thing I would suggest is to try and get the lowest dosage the doctor thinks will work for you...that will help avoid any cysts.

Most importantly, you should think through what you are going to be most comfortable with. I was taking the Chinese herbs until mid-June (the IVF clinic I am working with does not allow you to take herbs with their treatments). I really saw a huge positive impact from the herbs while I was taking them...I bet you see the same. Have you considered accupunture? I highly recommend that...really helps keep you relaxed.

If a doctor says you can never have a baby, stop seeing him/her. Get another opinion...as you know from the books you've read, you can have a baby. Take care Mary...you're going to make the right decision for you!!

Margie

iVillage Member
Registered: 05-06-2004
Fri, 07-23-2004 - 10:38pm
Margie,

You are so nice. You always respond to me. You know now that I tend to get on planes and go places, I just might come and see you so I can hug you in person! For now, I am sending one to you (hug!)

Thanks for your encouragement. I'll just pray that the answers will come to me. I will keep you in my prayers too. It really means a lot to me that you care.

God bless you,

Mary

iVillage Member
Registered: 11-30-2003
Sat, 07-24-2004 - 7:23am
Mary: Hey...support & encouragement are what this board is all about! I know when I've needed a lift, everyone is there for me. I have never been involved in a internet discussion group before...initially, I was so worried I would say the wrong thing or be giving too much advice or whatever. I found the women on this board to be so supportive and understanding.

While each of our ttc journeys are different, our vision of having a child is the same. I don't have any friends who've been through what I have...some have had to get fertility assistance, but they all now have children. It's so comforting to come here and know others can truly relate.

I am sure you have posted this before, but where are you from? I am from Chicago. My IVF clinic does not allow travel during the IVF process...but don't be surprised when this is all over if I hop on a plane and come give you a hug!!

The answers will come to you. And whatever your decision, don't 2nd guess yourself later (okay, easier said than done...wish I could always remember this myself...) Have faith. I will keep you in my prayers and appreciate the prayers you send my way.

Take care.

Margie

iVillage Member
Registered: 05-06-2004
Sat, 07-24-2004 - 10:09am
Margie,

We are really pretty close. I am from Bay Village, Ohio which is outside Cleveland. I think I can fly to Chicago for about $39 each way! Maybe we could get together and go see an Oprah show! We can tell her how we met and show her a picture of our new babies!

CBC this morning had an interview about acupuncture and infertility this morning. I did my Taebo, sat down, turned it on right to that interview. I thought that was a positive sign! The doctor said that you should go weekly or every other week for 3 months. I did have acupuncture in Houston and actually, it hurt. I kept remembering people saying if they are good, it won't hurt, but it did. I had a needle in my forehead and it bled when she took it out. Then I had one in the back of my knee. I think that would hurt no matter who did it. Maybe I just really needed to have it done and next time it will be better. I am going to continue, but I don't have someone local yet.

I don't know how I am going to pay for this, but I will just have to be very careful with my money. The RE I went to said that Insurance companies in Ohio are legally supposed to pay for infertility, but they don't. I have a small salary, but it is mainly to buy our food and household supplies for each month. My husband is unemployed, but started a part-time job (commission) at Sears making less than half of me. He doesn't even tell me the bills he can't pay. Somehow, I have gotten him to take the herbs they prescribed for him in Houston, but he isn't taking them 3 times a day yet, just once. He is falling into a depression. He gets angry about everything when this happens. I kind of feel right now that I don't even have a husband. I am sure losing his grandmother, our baby, not getting a new job, it is all just too much. Patience is so hard, but I know there must be something good to happen in the future. I just have to see something good in every day, but it is hard and I know it is for all of us.

Talk with you later,

Mary

iVillage Member
Registered: 11-30-2003
Mon, 07-26-2004 - 9:01pm
Wow Mary...you are close! Oprah here we come...with our bundles of joy in tow!!! Oh what a nice dream...now for us to make it a reality!

Accupuncture shouldn't really hurt...although I have a male friend who gets accupuncture all the time to relieve stress. A few times he has gotten the needle behind the knee and he said that did hurt a lot... I've never had a needle behind the knee. Usually, I don't have bleeding...although when I get a needle in my ear, it does seem to bleed.

My husband is also looking for work. He was laid off in August and found a contracting job in January. He is still looking for permanent employment. For right now, we are glad to have the contracting money coming in. It's hard to get through all the trials of infertility. I think it can really test your marriage. You've been through a lot in the past few months...financially & emotionally. Just remember to take time to do something fun, just the two of you. My husband & I have started to make a date just for us once a week. $$$ is kind of tight...so we might walk to a park or see a matinee.

Talk to you soon Mary. Take care.

Margie