I saw the Univ. specialist yesterday, and am so glad I did. He really knows his stuff, was attentive, compassionate, informative and actually listened to me and dh and our concerns. He ordered more tests, to find the exact stage. The entire oncology group meets on Monday, so they're going to go over my records, PET scan, biopsy slides, etc. and discuss treatment options. I should know more next week, but things are looking up. He was very emphatic that it's treated like a chronic disease and is totally unlike any other cancer. It can still go bad, but even if it does, there are still treatments available.
I really believe the prayers and good thoughts are truly helping. Thank you all, so very much!