My DS has hypotonia, and other issues (no cognitive dalays), he's 6 1/2 now. I have a friend who is a teacher, and sometimes I tell her of the issues DS is having in the classroom with his IEP not being followed. My friend knows my DS obviously, and has babysat him a few times over the years, so she knows his physical limitation better than most teachers would, but when I mention to her that DS's teacher was making him use crayons instead of markers, making him complete his work to the same level as his peers, she didn't seem to think it was a big deal, and I get the impression that she feels the teacher is doing the right thing by making him work harder. I am all for making kids work to the best of their ability, but he is physicaly paying for his hard work. The other night DS told me that his hand and wrist hurt because he did a lot of colouring with crayons, and cutting with scissors that day. Our OT said that over use of his hands will cause problems later on in life. DS will not tell anyone but us (parents) that he is hurting at school, so when we tell the teacher is sounds like we just want DS to be allow to slack off.
While DS is doing very well, there are a lot of things they do not see. For example, while he walks almost normal (appears to have a limp, and "clunks" his feet while walking) by the time he gets to school, they did not see when he first wakes up and has a hard time walking until he finds his legs each morning (some morning are worse than others where he may have to hold on the the wall).