Hi, I am a 55 year old female who worked as a hazardous waste worker in the 1990's. Shortly after I left that job I got the "flu" and was in bed for 22 hours a day for 3 weeks. I finally got over that then I started waking up feeling like I had been run over by a truck. finally diagnosed with fibromyalgia 15 years ago.
No real diagnosis of Sjogren's but I have dry eyes (lower punctal plugs), dry ears, dry mouth and raynauds. My son has psoriasis and so did my mom and dad. My sister has vitilago and I am starting to get white patches instead of freckling. When I go out in the sun my skin turns red really fast and I get a rash, even under my clothes.
My sed rate was normal, my rf was within normal limits and my ccp came back at 16, still normal, but elevated.
My doctor still has not sent me to see a rheumatologist yet. My right hip grinds when I walk and my right knee has been going out of joint at least once a week and I have pain behind the kneecap all the time. My left hip is also painful and my left knee only has 20% meniscus after 2 knee surgeries.
The bones in my spine ache. I didn't think that bones hurt, but mine does. My hands are so sore and weak that I have trouble holding my coffee cup. Sometimes I just want to cry.
I am so happy to have found a place that I can vent. My sons just don't understand.
I'm not even sure what is wrong with me, but it is definitely more than just fibromyalgia. Any hints or tips?