Two years ago, a benign cyst was discovered in my son's cerebellum (the part of the brain that controls gross motor). It was discovered by accident, when during an MRI of his spine, his brain was also scanned by mistake.
It was deemed to be benign, as I said, and the neurologist brought him back for two more MRI's at six months and one and a half years after the original MRI to make sure that it wasn't growing.
His last MRI was in September and it showed that the cyst had reduced in size markedly. We were all very happy to hear this. The neurologist told me that he did not need to have any more MRI's unless he showed symptoms. So I thought I could push that niggling worry to the back of my mind. Sigh...
About two days ago, my son told me that sometimes he feels like he is about to fall down. He couldn't really describe it, but told me that it happened when he was just sitting still. So it sounds like vertigo, maybe?? Not wanting to over-react, I told him to try not to worry about it, but if it happened again, to let me know immediately. Then, yesterday, he told me that his arm felt funny. I asked "How do you mean? Is it asleep?" And he said no... that it just felt floppy.
So I called and left a message at his neurologist's office. The nurse called me back this morning, saying that the doctor wants him to have an EEG right away. So we went in this afternoon (I pulled him out of school) and had the EEG done. Later, my son told me that he had experienced that feeling of being about to fall during the EEG. So... I guess that could be considered good (although I was just wanting it to go away forever and be a 'mystery!') since now I can tell the neuro what he said, and see if anything shows up on the EEG (which measures brain activity).
We will not know the results of the EEG until Friday, when we have an appointment with the neurologist. I am praying that this is just nothing important.
I am frustrated because, since I don't have any kind of name for what he is experiencing, I don't even know how to search for information about this on the net - I feel like I can't do ANYTHING - just wait. I hate that.
Thanks for listening,