My son ILyaas, is 17 months, just to give you a brief summary, he was brain injured at birth and as a result has, Cerebral palsy, Is fed through a G-tube(he can't swallow), has cortical visual impairment, hearing impaired, has a seizure disorder and myoclonic spasms, and has a history of aspiration pneumonia(this happened before the G-tube/Nissen fundoplication, when they discovered he has severe GERD. He was hospitalized for 5 months after his birth, he spent 5wks intubated and 2 months on the nasal Canula. We have been in and out of the hospital because of pneumonia and respiratory issues, since he came home (about 7 times). Well he was hospitalized recently for several apnea episodes(where he stopped breathing and turned blue). We (my husband and I) had to perform CPR on him. This has been very frightening and traumatic for us. Well everytime he is hospitalized the DR.s ask us have we thought about him having a tracheotomy. We just have been hesitant, and unsure, while he is breathing on his own, and doing well, when he is sick it seems as though it is becoming harder and harder for him to manage his secretions(we have a portable suction machine at home that goes everywhere he goes). I have really been in turmoil about this and wish I could make a firm decision on whether or not this procedure would be beneficial to him. HELP!! Any advice or comments would be welcome.
TIA, Saara mom of Naim 8, Ahsan 6, Ilyaas 17 mo, EDD 1/30/07