Dear ladies, I will do my best to get through this post. My sweet Faith isn't doing well at all. All feedings and fluids have been stopped because she just wasn't digesting them. Her heart rate has been so low at times that organs are shutting down including her stomach/bowels. It breaks my heart more than words can express. My little girl has faught so long and continues to fight as best she can...this time it's a battle she cannot win. Any fluids that she's given are not digested or absorbed and were filling her lungs...drowning her. I could not watch my baby girl drown in pedialyte. We've terminated all feeding/fluids. She is now just on a morphine drip to keep her comfortable. Of all the times I've posted on here and she's recovered and we've gone home, this is not one of those times. We are living up here at the hospital to be with her until she passes, which is only a short time away. It could be days but we all doubt it will be weeks. She's begun the different stages of her breathing changing little by little. These stages and changes are normal and a part of the dying process as the nurses and doctors have explained. She's comfortable with the morphine and sleeps in my bed at all times, I sleep with her at night. Her little body is weak and frail as she's lost so much weight that I won't let them weigh her anymore. That's all I can get through at this point, the tears are flowing too fast and my hands are shanking so much I keep having to backspace to correct my typing.
Please pray for us as we wait for our precious sweet girl to grow her wings.