My 7 yr old DD was recently diagnosed with PDD-NOS. She has such a long, odd list of issues and I'm overwhelmed where to start of how to help her. Right now our biggest issue is that she complains every night of severe joint and knee pain and struggled to fall asleep. I have researched this on the internet and think it might be Restless Leg Syndrome, which of course (like AS) has no known cause or cure. Fabulous. She is already off of gluten and dairy, and takes fish oil and 5HTP for anxiety as well as 25 mg of zoloft from when the anxiety was really bad. IN addition to the aching joints and difficulty sleeping, she gets chronic sinus infections, is very clumsy and struggles to maintain social friendships. She is also acutely aware of the fact that she is different. She IS socially interested, she DOES initiate with others, and she can make strong initial connections but somehow can't seem to maintain them. Also at home she is so resistant and difficult to do what we ask of her. Brush her teeth, eat breakfast, blow her nose. All of it is like pulling teeth. I work two jobs and one I do from home at night and I can barely get anything done because she comes our of her room twenty times with various complaints.
Some nights I find myself lamenting that I don't have a "normal" kid like everyone else. Those times I feel very sorry for myself about how bad I have it. Other nights, I feel so terrible that my daughter cannot just have a peaceful, easy childhood like so many of her peers. Mostly I just am hoping any of you with similar issues can share anything you have done that has helped your child. I would just like to help her with her struggles because she is really a vivacious and wonderful girl who is sometimes held down by her problems. Thanks in advance for any feedback, especially from moms of girls.