My name is Courtney. My dd, Paige, is 7 years old and in 1st grade. In Kindergarten, her teacher noticed that she had a lot of difficulties with social aspects, transitions, and overall attentiveness. By the end of her kindergarten year, after several different types of evaluations (hearing, speech and language, etc), the school psychologist evaluated her and suggested Aspergers. The school psychologist, by law, cannot give that diagnosis so we had to take her to a developmental unit at Children's Hospital (as referred by our insurance) to have her evaluated. We met with a behavioral consultant for about an hour and she said, NO, not Aspergers but inattentive ADD.
Well, in first grade, some things got better and others got worse. The attentiveness improved but the social aspects got worse in some areas (Paige over tries to be social often scaring kids away) and sensory issues arose (she chews on clothing, hair, paper, etc. and will just whip her shirt off if it "bothers" her). After a VERY frustrating meeting at school with the IST, I decided to take matters into my own hands OUTSIDE the school. A place called the DT Watson institute was suggested to me and I made the appointment. There, we met with a psychologist for almost 3 hours. He made the diagnosis of mild Asperger's and now we can get Paige the support she needs at school. Without that diagnosis, they could not allow the specialist who works with the children with autism even observe Paige.
I'm just looking for others who have children diagnosed with this so I can have some idea of what to expect now and in the future and maybe get some advice on helping her. This diagnosis was just given last week so I am just really starting out here. I have no clue of what is to come.
Courtney (mommy to Paige, 7 and Gracie, 3)