I was posting over on Dev. Delays and I saw that you all were here!
Two weeks ago the EI people mentioned the word "PDD" to me. I have a 33 month old DS (and a 5-1/2 year old DD and an 11-week old DD). When I took the baby to the ped. for a well-baby visit I started talking to her about Jack. How he seems "out there" and she immediately (bless her) started asking me all the right questions and referred me to Birth to Three. He is now getting 3 hours a week w/ a special educator, 2 hours a week of speech and 3 hours of OT (his motor skills are fine but there seem to be sensory issues).
Anyway, I don't have a Dx. yet. We have an appt. w/ a big deal developmental ped. in NYC in June... The EI people aren't sure if it's PDD -- he is apparently very high functioning in some areas. But from what I've read, I can't help but think that it is.
DS hit all his developmental milestones, but we think he regressed socially after age 2. He speaks in sentences, albeit "stock" ones -- "I want to eat ___", "I want to read ___", "Can I have it, please?" etc. The speech pathologist actually thinks his vocab. is "wide" but he isn't using it. His sentences get his needs met, so fortunately there is little tantruming. He makes eye contact w/ adults. His use of toys is semi-OK. He CAN do pretend play if someone else initiates it. He is generally a happy little boy. He loves both of his sisters, plays "cootchie coo" with the baby etc. He seems almost interested in other kids, but just not able to "get there", e.g. there were lots of kids playing in our cul de sac and he went out in the middle and ran around among them and then ran off.
We had our transition meeting with the school district. They will evaluate him themselves in the next couple of weeks, but I let it be known that I want a spot for him in their summer "camp" as well as the school's special nursery school next year (supposed to be a great program -- they have one-on-one care). Sadly, I had planned on trying to get him in there as a "typical" and now I need a spot on "the other side." I can't see how they could not take him.
The one good thing that has come of this is that I have had great support from a friend w/ an Asperger's DD, as well as two new friends w/ autistic DSs and also coincidentally typical DSs who are my son's age. They are really kind and bring them to play -- the only playdates that I don't feel uncomfortable on. I've really been loading up on playdates (as difficult as it is for me) and my friends are very kind and compassionate about it. I know they feel "by the grace of God go I."
I have been doing a lot of reading and research (where would we be without Amazon.com?) It seems to depress me more, but I feel I need to do it.
I have been so-so emotionally. My DH is a great support. Originally I got the (what I understand to be usual for DH's) "Look! He talks! He's just fine!" But now DH is with the program, doing a lot of reading on the topic and keeping me calm and upbeat. It is hard trying to give my all to everyone, including a newborn baby who deserves nothing but joy around her. I feel almost guilty that I'm not enjoying her to the fullest b/c of this going on.
I would love some feedback from moms of older PDD-NOSs to see how this unwinds down the road. We are hopeful b/c of some of his skills and that we are intervening on the early side (before age 3).
You guys seem like a great group. Thanks for listening.