My dilemma is that I have never had him officially diagnosed. I was warned not to; that it would become a pre-existing condition on our insurance(DH may change jobs in a year,too) and that his medical needs are no different from any other child.
Well, I followed this advice because if the medical people had nothing to offer me then why go? He is getting help at school and we have had a positive experience without a diagnosis. However, I have heard that the school can get more money toward programs such as his if he has the official diagnosis.
Today, though, I took him to see his podiatrist that he has been seeing for 3 years and the guy was just baffled. Despite everything he has done, my son still walks on his toes and his gastrocnemus muscles are tight and other problems due to walking on his toes. I finally asked him if he had ever heard of asperger's. When I mentioned the sensory issues he said that explained a lot and that he was about to suggest that we see a neurologist. He's also been toying with the idea of surgery to lengthen his heel cords, but after talking about the asperger's, he said that it might do no good and if he continued to walk on his toes the results of the surgery would just go back to tight heel cords anyway. I don't want to have needless surgery and by not disclosing info to doctors am I compromising my son's care? I'm not trying to deceive doctors and if an insurance questionnaire ever asked me I would tell them the truth.
I'm just wondering what your experiences have been. Has it affected your insurance coverage? Has it helped your school to have an official diagnosis?(it was an education agency connected to our school district that warned me not to). Any help would be greatly appreciated.