Hi everyone. I've been lurking for a few weeks now and hope you all can help provide me with a little desperately-needed perspective. My son, Calvin, turned 2 on May 7. He's a beautiful little boy with a big personality and lots of energy. He loves books, being outside and being with us. We discovered he had hypotonia when he was 6 months old because he wasn't putting any weight on his legs. We started with PT and over the course of the year he hit all his motor milestones and finally walked at 20 months. It seemed like a long time, but now looking back, it wasn't all that bad. I can now see he was making incremental progress each day. But our worries aren't over. Although he began babbling at 8 weeks (for real!) he still only has a half a dozen real words and the same number of signs. When he wants something he points and grunts. His receptive language skills seem to be good however. And now his occupational therapist says she's worried about his fleeting eye contact with her (although he's always made eye contact with us and our close friends and family) and his tendency to get "stuck" on things. What kind of things? Spinning the wheels on cars, opening and closing doors, going up and down stairs and a few others. We can distract him away from these things usually just by telling him to find something else to do, but if left to his own devices without us playing with him directly, these are his favorite activities. He does play with his toys, but not in an imaginative way and I'm not sure if ALL kids do this by two years of age. The bottom line is, we are going to see a developmental pediatrician in July and if she is at all conservative, we are going to get a dx of him somewhere on the spectrum. The spinning the wheels thing is the biggest sign as far as I can tell. So I am trying to prepare myself for this kick to the stomach. I know it's coming and in a way it will be a relief, but I can't keep myself from crying and crying and crying. Partly because I don't know what this means for him. He's my only child (the possibility of a second child has been tabled until we know what's going on with him) and I've only envisioned a typical childhood for him and now I don't know if that's even possible. I pictured school and friends and high school graduation and college ... I could go on and on. And now I feel like his speech and occupational therapists are tiptoeing around me and telling me what a great kid Calvin is ... like they're preparing me for the bad news we're about to hear. So what I need to hear is hope. Worst case scenario, we get this dx. Of course we get all the help and services going, but what can we hope for? I need to hear something good. Thank you.
Kellie & Calvin