Hi everyone Im Shana. I have 4 kids Star is 11 she has PTSD and anxiety, Nicholas is 10 he has ADHD, ODD, Aspergers, Mood disorder, speech issues and Sensory issues, Jaden is 5 she has ADHD with a touch of ODD and speech issues and Joey is 4 and has ADHD and speech issues. Im starting to think that the 2 little ones have Aspergers also (but I dont know if they are just acting like this because they see their older brother doing it or if they have their own issues).
Nicholas is on depakote 750 at night, seroquel 25 at night and tenex 1 mg in the morning and at noon. We have tried the stimulant meds on him for the adhd and he didnt react well to them (this was before all the other meds started and before he got the mood disorder dx).
He is very moody at a moments notice he can just go into a rage throwing things beating on his younger brother and sister, he doesnt do what hes told, he argues with everything that we tell him doesnt matter what it is, he doesnt really have any friends, he does poorly in school (he is on an IEP for reading and math), he wants to be in control all the the time. He doesnt think before he talks just blurts stuff out, he does the hand flapping, he still sucks his thumb.
Nothing we have done helps with the behaviors we have tried time outs spanking (before we knew of all of his issues), grounding, we have rewarded good behavior, have charged for misbehaving, taking things away and he just doesnt care and he will tell you he doesnt care.
He goes to a psyc dr that does the meds, we have a therapist that goes to the school twice a week, he also sees her once a week in her office, hes in OT, we go to another therapist once a week to try to help with the behaviors.
We have been to other drs and they told me it was just a bad gene pool, to isolate him away from everyone not to talk to him or anything just act like hes not there and to keep a 20 foot "bubble" around him at all times (didnt go back to him), been told to use a cattle prod on him (again didnt go back there), been told they just dont know what to do to help from the drs and therapist.
He gets bullied and picked on at school. We live in a small town in the middle of no where, to get to the either of the closest bigger towns (Omaha NE and Sioux City IA) I have to drive about an hour and half 1 way (which I do weekly for OT and one of the therapist)I just dont know what to do with him or what to do to help him. No body seems to be able to help or give me answers. At least once a week I end up at school for his behavior, I now have to drive him to and from school because of the issues on the bus.
Jaden is on adderall which does seem to be helping with the ADHD, she still has issues with ODD but not bad as Nicholas, the therapist that goes to the school to see Nicholas sees Jaden once a week. We have an appointment to get her checked for sensory which I think she has issues with and then will start OT for her. She gets speech at school and gets extra help at school (they did her eval for her IEP before meds were started) the teachers dont think that shes needs the extra help they say shes smarted then alot of the kids in the class already.
Joey is on tenex which doesnt do anything for him (we go back to the dr next week). He gets speech at school and is having a eval for sensory next week also. He is in preschool 2 days a week.
Star is just a normal 11 yr old she is moody and has an attitude and gets mouthy at times.
Least to say with all the issues my kids have Im a stay at home mom or should I say a never at home mom (which makes money really tight adding to the stress). No one will babysit for Nicky because of the way he acts so I cant even get a break there. My house is chaos alot of the time. Im stressed to the max and on major over load. I just dont know what to do anymore.
Ive looked online to try to figure out something to help Nicky and I end up on over load going in circles and end up getting nothing out of it. Ive even looked at getting Nicky a service dog because I found something saying that helps. My boyfriend has taken on my kids and me, He is amazing but he just doesnt understand about Nicky and doesnt know what to do with him hell neither do I. There tends to be alot of screaming and yelling in my house which just adds to my stress level. At this point if someone told me standing on my head all day would help I would do it.
Edited 1/20/2010 4:44 pm ET by shana82