I am so happy to find an active board for this. It has been sort of a long journey to our informal PDD-NOS diagnosis.
My dd, who will be 6 in June, was just diagnosed last week. I say informal because the dr hasn't given us the the full diagnosis yet.
Her behavior problems starting in preschool, but they escalated the same time I started working after being a sahm mom so I thought it was a transition issue and things did get much better with therapy.
Fast forward to starting preschool last fall. The behavior issues started again. I personally know her teacher so she wasn't afraid to tell me she had some real concerns. I made an appointment with a psychologist to have her evaluated. This psychologist saw her for one appointment of about an hour and diagnosed her with ODD. In my heart I knew this wasn't right, she may not seem to listen to you, but she is rarely defiant. Her teachers both agreed, they never have any problems with outright defiance. So I started a search for a new psychologist. I broke down and called the state university children's hospital. They gave me the name of a dr in my town who had studied there. He was very hard to get into, but so worth it! He finally gave me the PDD-NOS diagnosis after spending several hours with her and I over 3 appointments.
I feel very strange saying that I am actually relieved by his diagnosis. The past year and a half of wondering what was wrong with my little girl, has finally come to an end! I'm not saying I'm not scared, but at least now we can be on the right path to helping her.
I am really looking forward to keeping up with this board and having contact with parents facing the same challenges.