Gastrointestinal Stromal Tumors - Resources

SYMPTOMS & TREATMENTS

American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta, GA 30329
USA
Tel: (404)320-3333
Tel: (800)227-2345
TDD: (866)228-4327
Internet: http://www.cancer.org

National Cancer Institute
6116 Executive Blvd
MSC 8322
Room 3036A,
Bethesda, MD 20892-8322
USA
Tel: (301)435-3848
Tel: (800)422-6237
TDD: (800)332-8615
Email: cancergovstaff@mail.nih.gov
Internet: http://www.cancer.gov

National Coalition for Cancer Survivorship
1010 Wayne Avenue
7th Floor
Silver Spring, MD 20910
Tel: (301)650-9127
Fax: (301)565-9670
Tel: (888)650-9127
Email: info@canceradvocacy.org
Internet: http:// www.canceradvocacy.org

OncoLink: The University of Pennsylvania Cancer Center Resource
3400 Spruce Street
2 Donner
Philadelphia, PA 19104-4283
USA
Tel: (215)349-8895
Fax: (215)349-5445
Email: hampshire@uphs.upenn.edu
Internet: http://www.oncolink.upenn.edu

Sarcoma Foundation of America
9884 Main Street
Damascus, MD 20872
USA
Tel: (301)253-8687
Fax: (301)253-8690
Email: info@curesarcoma.org
Internet: http://www.curesarcoma.org

Sarcoma Alliance
775 E. Blithedale #334
Mill Valley, CA 94941
USA
Tel: (415)381-7236
Fax: (415)381-7235
Email: info@sarcomaalliance.org
Internet: http://www.sarcomaalliance.org

Rare Cancer Alliance
1649 North Pacana Way
Green Valley, AZ 85614
USA
Tel: (520)625-5495
Fax: (615)526-4921
Internet: http://www.rare-cancer.org

Life Raft Group
155 Route 46 West, Suite 202
Wayne, NJ 07470
USA
Tel: (972)837-9092
Fax: (973)837-9095
Email: LifeRaft@liferaftgroup.org
Internet: http://www.LifeRaftGroup.org

GIST Cancer Research Fund
55 Saw Mill Road
New City, NY 10956
USA
Tel: (845)634-6060
Fax: (845)634-1174
Email: tania5kids@aol.com
Internet: http://www.gistinfo.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Internet: http://rarediseases.info.nih.gov/GARD

GIST Support International
12 Bomaca Drive
Doylestown, PA 18901
Tel: (215)340-9374
Fax: (215)340-1630
Email: gsi@gistsupport.org
Internet: http://www.gistsupport.org

Friends of Cancer Research
2231 Crystal Drive
Suite 200
Arlington, VA 22202
Tel: (703)302-1503
Fax: (703)302-1568
Email: info@focr.org
Internet: http://www.focr.org

Cancer.Net
American Society of Clinical Oncology
2318 Mill Road
Suite 800
Alexandria, VA 22314
Tel: (571)483-1780
Fax: (571)366-9537
Tel: (888)651-3038
Email: contactus@cancer.net
Internet: http://www.cancer.net/patient

Cancer Support Community
919 18th Street N.W.
Suite 54
Washington, DC 20006
Tel: (202)659-9709
Fax: (202)659-9301
Tel: (888)793-9355
Internet: www.cancersupportcommunity.org

Lance Armstrong Foundation
2201 E. Sixth Street
Austin, TX 78702
Tel: (512)236-8820
Fax: (512)236-8482
Tel: (877)236-8820
Email: media@livestrong.org
Internet: http://www.livestrong.org

BeatSarcoma
76 Ellsworth Street
San Francisco, CA 94110
Tel: (415)651-4473
Email: info@beatsarcoma.org
Internet: http://www.beatsarcoma.org/

Northwest Sarcoma Foundation
2065 NW Miller Rd.
#404
Portland, OR 97229
Tel: (503)954-5740
Fax: (503)297-6932
Email: melissa@nwsarcoma.org
Internet: http://www.nwsarcoma.org

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  3/26/2008
Copyright  2004 National Organization for Rare Disorders, Inc.

© 1995-2011 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

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