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Muscular Dystrophy
International network. Founded 1994. Support for parents of children with Duchenne and Becker muscular dystrophy. To improve the treatment, quality of life and long-term outlook for all individuals affected by DMD through research, advocacy, education and compassion. Provides user-friendly website with online forums, scientific and legislative conferences, newsletters, information on newest diagnosis, standards of care and research strategies.
Write:
Parent Project for MD Research
158 Linwood Plaza
Fort Lee, NJ 07024
Voice: 1-800-714-5437 or 201-944-9985
Fax: 201-944-9987
Website: http://www.parentprojectmd.org
E-mail: info@parentprojectmd.org
Verified: 12/15/2009
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2010 American Self-Help Group Clearinghouse. All rights reserved.
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