Phenylketonuria (PKU) - Other Places To Get Help
SYMPTOMS & TREATMENTS
Organizations
| Children's PKU Network | |
| 3790 Via De La Valle | |
| Suite 120 | |
| Del Mar, CA92014 | |
| Phone: | 1-800-377-6677 (858) 509-0767 |
| Fax: | (858) 509-0768 |
| Email: | pkunetwork@aol.com |
| Web Address: | www.pkunetwork.org |
The Children's PKU Network is a nonprofit organization that offers networking services, resources, a hotline, and family support. | |
| Genetics Home Reference, U.S. National Library ofMedicine | |
| 8600 Rockville Pike | |
| Bethesda, MD20894 | |
| Phone: | 1-888-FIND-NLM (1-888-346-3656) |
| Fax: | (301) 402-1384 |
| TDD: | 1-800-735-2258 |
| Email: | custserv@nlm.nih.gov |
| Web Address: | www.ghr.nlm.nih.gov |
The Genetics Home Reference provides information on more than 250 genetic conditions. It also contains a glossary, a handbook, and other tools for learning about human genetics and the way genetic changes can cause disease. The Web site also has links to additional resources for people who have genetic conditions and for their families. | |
| March of Dimes | |
| 1275 Mamaroneck Avenue | |
| White Plains, NY10605 | |
| Phone: | (914) 997-4488 |
| Web Address: | www.marchofdimes.com |
The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents. | |
| National Institute of Child Health and HumanDevelopment | |
| P.O. Box 3006 | |
| Rockville, MD20847 | |
| Phone: | 1-800-370-2943 |
| Fax: | 1-866-760-5947 toll-free |
| TDD: | 1-888-320-6942 |
| Email: | NICHDInformationResourceCenter@mail.nih.gov |
| Web Address: | www.nichd.nih.gov |
The National Institute of Child Health and Human Development (NICHD) is part of the U.S. National Institutes of Health. The NICHD conducts and supports research related to the health of children, adults, and families. NICHD has information on its Web site about many health topics. And you can send specific requests to information specialists. | |
| National PKU News | |
| 6869 Woodlawn Avenue NE | |
| Suite 116 | |
| Seattle, WA98115 | |
| Email: | schuett@pkunews.org |
| Web Address: | www.pkunews.org |
This organization creates a newsletter and develops other materials (such as diet information and recipes) for people with PKU and for their families. The Web site includes treatment information, an e-mail discussion group, and links to related Web sites. | |
| By: | Healthwise Staff | Last Revised: May 17, 2011 |
| Medical Review: | Susan C. Kim, MD - Pediatrics Kathleen Romito, MD - Family Medicine Thomas Emmett Francoeur, MDCM, CSPQ, FRCPC - Pediatrics | |
1995-2011 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.
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