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Thalassemia - Other Places To Get Help
SYMPTOMS & TREATMENTS
Organizations
| Centers for Disease Control, Hereditary Blood Disorders Team | |
| 1108 Corporate Square | |
| Atlanta, GA 30329 | |
| Phone: | 404-639-8040 |
| Email: | hdb@cdc.gov |
| Web Address: | www.cdc.gov/ncbddd/hbd/default.htm |
The Hereditary Blood Disorders Team of the Centers for Disease Control works to prevent and reduce complications experienced by people with certain hereditary blood disorders: bleeding disorders, thrombophilia (clotting disorders), and thalassemia. | |
| Cooley's Anemia Foundation | |
| 330 Seventh Avenue | |
| Suite 900 | |
| New York, NY 10001 | |
| Phone: | 1-800-522-7222 |
| Fax: | (212) 279-5999 |
| Email: | info@cooleysanemia.org |
| Web Address: | www.cooleysanemia.org |
Cooley's Anemia Foundation is a nonprofit organization dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia (thalassemia major). The foundation's mission is to advance the treatment and cure for thalassemia, enhance the quality of life of people who have it, and educate the medical profession, trait carriers, and the public about this fatal blood disease. The foundation encourages donations of blood, since thalassemia patients are the single largest users of blood supplies in the nation, and also sponsors chapters and support groups. | |
| Iron Disorders Institute | |
| P.O. Box 675 | |
| Taylors, SC 29687 | |
| Phone: | 1-888-565-IRON (1-888-565-4766) (864) 292-1175 |
| Fax: | (864) 292-1878 |
| Email: | patientservices@irondisorders.org |
| Web Address: | www.irondisorders.org |
The Iron Disorders Institute is a national voluntary health agency that provides information about iron disorders such as hemochromatosis, acquired iron overload, sickle cell anemia, thalassemia, iron deficiency anemia, and anemia of chronic disease. The organization works with a scientific review board as well as various medical professional groups. A free newsletter, idInsight, is available. | |
| National Heart, Lung, and Blood Institute (NHLBI) | |
| P.O. Box 30105 | |
| Bethesda, MD 20824-0105 | |
| Phone: | (301) 592-8573 |
| Fax: | (240) 629-3246 |
| TDD: | (240) 629-3255 |
| Email: | nhlbiinfo@nhlbi.nih.gov |
| Web Address: | www.nhlbi.nih.gov |
The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating:
| |
| National Human Genome Research Institute, National Institutes of Health (NIH) | |
| NIH Building 31, Room 4B09, 31 Center Drive | |
| MSC 2152, 9000 Rockville Pike | |
| Bethesda, MD 20892-2152 | |
| Phone: | Phone: (301) 402-0911 |
| Fax: | (301) 402-2218 |
| Web Address: | www.genome.gov |
The National Human Genome Research Institute (NHGRI) supports genetic and genomic research, investigation into the ethical, legal, and social implications surrounding genetics research, and educational outreach activities. (Genome refers to a complete gene sequence in a organism.) NHGRI also supports the training of investigators and provides genome information, including fact sheets and school materials, to the public and to health professionals. | |
| By: | Healthwise Staff | Last Revised: February 10, 2011 |
| Medical Review: | E. Gregory Thompson, MD - Internal Medicine Adam Husney, MD - Family Medicine Brian Leber, MDCM, FRCPC - Hematology | |
© 1995-2011 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.
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